prolia: I will be starting Prolia soon... - Osteoporosis Support

Osteoporosis Support

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prolia

MissKitty777 profile image
8 Replies

I will be starting Prolia soon. It is important to get your vitamin levels up. It will help your immune system. I know at least five women taking Prolia and none of those had any problems with it. I decided that any side effects could not be as bad as a broken back.

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MissKitty777 profile image
MissKitty777
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8 Replies
Met00 profile image
Met00

The main thing you need to be aware of is that if you stop taking it at any point, you need to go straight onto another osteoporosis medication, almost always a bisphosphonate.

yogalibrarian profile image
yogalibrarian

Good point! Much of the discussion gets side-tracked into the scary but very rare adverse effects. Very little focuses on the possible "side effects" of not treating osteoporosis -- possible long-term disability or death.

KidneyCoach profile image
KidneyCoach

Well a broken back caused by prolia may change your mind.

MissKitty777 profile image
MissKitty777 in reply toKidneyCoach

did your back break because of it? Did you meet someone whose back was broken as a direct result of Prolia? How long were they on Prolia before the back was broken? More information is definitely needed.

foxysharon profile image
foxysharon in reply toKidneyCoach

Did your spine fracture after stopping Prolia?

KidneyCoach profile image
KidneyCoach

No, but I did have a broken leg due to prolia and more spinal compression fractures. I had been on Prolia just a few months. Stopped it and no more broken bones except a few toes. That was in 2017. No more drugs for my advanced osteoporosis. Blessings

foxysharon profile image
foxysharon in reply toKidneyCoach

Im not trying to be harsh but you said you had advanced osteoporosis. Were only on Prolia for a few months and say Prolia caused you to break your leg and back? Could you please give more detail about this. What else have you taken for your advanced osteo? More detail helps others i think.

KidneyCoach profile image
KidneyCoach

I took Fosamax for 6 years AFTER several fractures in spine, feet, fingers. My osteoporosis was caused by extremely elevated PTH (Parathyroid hormones) left untreated for 6 years. By the time I had a parathyroidectomy my PTH levels were well over 3500 (normal is 100). I am a kidney failure patient on long-term dialysis which complicates things. Ive not taken any osteoporosis med since I stopped prolia. HTH BLESSINGS

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