I'm new here and wanted some advice regarding my surgery on 22 February. This is a bit of a long story but I'll try and make it as brief as I can.
I'm 42 with 2 young sons. At the age of 20 I was diagnosed with osteosarcoma which is a form of bone cancer. I've had chemotherapy, radiotherapy and surgery on my spine which has involved a lot of metal work. I last had surgery to remove a tumour from my thoracic spine in 2009 however in 2015 I started to have tremendous pain in my left shoulder along with haemoptysis after slipping in my kitchen. For four months I was in hospital being investigated until I had a massive aneurysm, luckily hospital staff saved my life and I was sent to St George's in Tooting (in the U.K.) and had an emergency stent. Whilst I was on ITU I was told that some of my previous metal work had caused the aneurysm and also a screw had gone through my oesophagus.
Ever since August 2015 I have been solely peg fed and tremendously ill. It seemed that there were no surgeons who wanted to operate on me due to my previous aneurysm and to the high risk nature of the operation. But I'm now in the position where I have a team of surgeons including orthopaedics, ENT, vascular, cardiothoracic, ready to do the operation of taking out and replacing the metal work and removing my oesophagus. As I have been left for so long the surgeons feel that my oesophagus has become so mushy around the screw the hole would not be able to be repaired following removal of the screw and therefore total removal of the oesophagus is my only option which will leave me unable to eat or drink or swallow my saliva. I was given 2 other options, one was removal of metal work with removal of my oesophagus, a stomach pull up and removal of my voice box which would leave me with a tracheostomy and unable to speak, or the second was to do nothing and most likely only survive for 1 to 2 years due to sepsis in the cavity in between my rib and chest wall area.
So as you can see, I've had a pretty tough couple of years. I've had cancer and survived!
My family life has suffered tremendously. My sons miss their mummy and my heart aches not being with them. My marriage is not in good shape and my whole family have literally been on tender hooks waiting for an operation where I can have some kind of quality of life back.
Is there anyone out there that has had their oesophagus removed due to some kind of trauma? Is there anyone that has had their oesophagus removed and has to spit out their saliva due to not being able to swallow?
I am extremely terrified about my impending surgery. I simply cannot live any longer with pain and coughing up blood all of the time. I'd be grateful if anyone can let me know if they have anything similar happen to them?
Thank you for taking the time to read my story.