Recently diagnosed

[Deeedals]

I’ve just been diagnosed with grade 2 adenocarcinoma 9 years after an EMR . It was found on my 3 yearly endoscopy which was 10 months late due to COVID.

To say I’m devastated is an understatement. Can you give me a pep talk and tell me to put my “ big girls pants on”

Monday for treatment plan and an iron transfusion because I’ve been found to be severely anaemic just to add insult to injury!

[Popsic]

Oh bless you, I'm not sure what an EMR is, sorry, but I've read that stage 2 is where the cancer has grown but not spread, so that's a positive, they've caught it and they can treat it, I know its a shock and something none of us want to hear, but I'm sure once it's " sunk in", your determination will kick in, you've beat this once, you can beat it again. I may not be of any help, but stay strong, stay positive and stay safe. Thoughts and prayers are with you x

[sallym]

Not to sure about the pep talk, but for what its worth diagnosed given three years to survive I am now starting my 27th year of survival. They have made great advances since then, so travel with hope. Best wishes for your journey. Sally

[Popsic in reply to sallym]

Wow! You have no idea how much I have needed to hear this in the last 3 yrs, I know its not my post, but I'm scared to death of cancer returning and have been praying for answers to survival rates, so thank you ♥️

[champagnelover]

Hi Deedals I can relate to everything you are saying. I was diagnosed with the same at the same stage as you BUT that was nearly 12 years ago! I had the operation only and am so grateful to the wonderful NHS staff including my GP. Hopefully your team will be just as good. I hope you are allowed to take someone with you to discuss your plan, if not write down any questions you have. Try to stay as positive as you can, I know that is easy to say with the added worry of Covid. The OPA is a useful organisation for useful advice and reassurance. There are many on here who have survived this and are enjoying life so do keep in contact and let us know how you are.

[Spikey]

Just to add to what Sally said, I had a T3 adenocarcinoma at the junction between my oesophagus and stomach. However, after chemotherapy and surgery, I am still here 14 years later.

[petercaron]

3 1/2 years ago, they discovered a stage 3 adenocarcinoma in the lower part of my esophagus. Within 10 days I was started on a 28 day radiation treatment. During those 28 days I received 5 chemo treatments. About 45 days after the radiation, I had an esophogectomy. The surgeon felt he was able to remove the cancer with large clear margins. I remain cancer free with 6 month scans and my oncologist believes I am cancer free.

Glad you are meeting on Monday for your treatment plan. Stay positive and push for treatments to begin ASAP.

[kiddy]

Hi there,It is daunting but once you get a treatment plan you just go along with it. Make sure you you take a notebook and write things down. Keep a diary of how you are feeling each day it’s good to see the ups and downs of treatment.

I am nearly 5 years clear.

My treatment was 3 cycles of chemo, IVor Lewis oesphagectomy op then further 3 cycles of chemo.

Keep healthy and eat as well as you can. I lost 3 stone but gained a stone back.

We are all on here to answer any questions from experience.

Good Luck

Debbie