Help please

[Cal-1991]

Hi everyone ...

Wrote a similar thing before but it’s never been resolved hope some one can help ... mum had the Ivor Lewis operation 2 years ago ... and she has been doing ok legs are still weak and other things but she seems ok .... but literally every 3 months she has a spell of throwing up for a week and not eating ... a few people said it could be dumping syndrome but she not gonna get it every 3 months like clock work ... can anyone help please ...

[Semaphore05]

I had my op 7 years ago and still get occassional reflux. Since the op I take 2 x 20mg Omeprazole after my evening meal and 1 x 10g Metoclopramide before the meal to reduce reflux. I don't know if everyone is on the same medication after the same op. I presume it depends upon your consultant. Hope this is of some help.

[Popsic in reply to Semaphore05]

Hi Semaphore

I had my op 7 yrs ago too, I'm on 20mg omep twice a day, I take one in the morning one about 7.30, I can't take metaclopamide as I'm allergic to that and domperidone, so I take a erythromycin daily, seems to work, but do you find taking the omeprazole together works better than taking them separately?

[liz_crisp]

I am nearly 11 years on and still get dumping or stomach upsets where it all goes to pot. It’s quite normal and yes it will happen on and off for a long time. It can be eating too much at any one time, changing your eating routine, ie going away for a few days or eating different food, something someone else has cooked. Or just your gut slowly getting better and changing the way it deals with food. You don’t just get better and go back to normal, you have to remember you have had a complete change in plumbing. You do get back to a form of normality but occasionally it will remind you. If it carries on, talk to her CNS, have it checked out. She might need a stretch (scar tissue tightening or the valve opening ).

Take care, she is doing well

Lizzy

[Cal-1991 in reply to liz_crisp]

Hello thanks for ur reply ... don’t think it’s dumping as it lasts for a least a week of throwing up .... and it seems to be every 3 months it happens

[Cal-1991]

Anyone have an idea what it could be ?

[Mauser1905]

There is some pattern in what you wrote. And Dumping Syndrome is very predictable and not too same time. Every person understands their own body very well.

None of us can diagnose your mother on this forum.

I hope your mother has been seen by her GP, GI team via CNS as she is still 2 years out from surgery.

A simple referral to community dietetics can also help find the pattern in her eating, drinking habits.

Having said that from your words it doesn't look life threatening or emergency situation, unless she has been ill with fever and blood in vomit or stool/urine.

Occasionally someone may develop nausea towards the routine food like same meals type over and over period, and throw up due to psychological induced nausea and throwing up. Unless something infected and causing issues, but that is why I stated high temperature associated with the vomiting.

Dumping Syndrome is not a single symptom but a collective of variety of symptoms with larger variations among the survivors.

Put simply a food diary on such episodes will help establish the pattern. Have your mother managed to do a food diary leading to her throwing up every often?

[Cal-1991 in reply to Mauser1905]

Hello thanks for getting back to me .... we spoke to the cancer nurse and she is gonna get an appointment for my mum.... I’m she said it’s very strange it’s every 3 months and she doesn’t seem to have a clue either what it could be ....