Can anyone read my story and help.: Hiya My... - OCD Support

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Can anyone read my story and help.

12 years ago•3 Replies

Hiya

My fear is of becoming unwell and not being able to get to a toilet. This causes me to go into sever panic when ever I need the toilet just incase I can't get to one. I have IBS which unfortunately for me means I often feel unwell and have to use the bathroom more other than others. As soon as I eat I can need to go to the bathroom therefor feeding my anxiety. This therefor means any type of traveling is very traumatic for me as Im very fearful that I will have to go to the bathroom and I will be nowhere near one. I know where every toilet is where ever I go, I won't go places where I feel the toilets aren't sufficient ( if there's only one because that can break and then what would you do??) I stress for other people when they say things like I'm staying in a hostel with a shared toilet, well what happens if you get sick???? Or someone else does and you can't get in!?! These are the thoughts I have every day. If I'm on a bus with every time the wheels move I'm working out what toilet I'm nearest. I have even climbed through a boarded up window to go to a toilet. I wold never go somewhere where there wasn't one.

I have had cbt unfortunately I didn't find it very helpful long term. I'm looking into hypnotherapy has anyone else tried this?? What's your thoughts? Does anyone have any other ideas of mentors to help?

It's so extreme I only go to the same place n holiday every year, lucky for me it's Florida but I can't do anything different and the thought of staying at a different hotel is something I can't comprehend as I like the amount of toilets in the one we usually go to.

I'm ready to now talk and to seek help before I wasn't so I'm also hopeful that more counciling will work better this time around.

I would love to eat where ever I wanted I recently went to Blackpool for the day.mafter the three hour drive I was a mess and instantly wanted to check into a hotel as I knew coming home would take to long. I had a panic attack in the middle of the pleasure beach but I managed to calm my self down however I wouldn't eat anything until I got home that was over 17 hours with only a donut.

Can't wait to hear from some people who can Mary relate as this is the first time iv spoken out!

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12 years ago

Hi there. You know, your health concerns OCD is not unusual. it is like mine in that it is probably Pure O or ruminating. The more you try to neutralise your fears, the worse and worse it will get. In the end you need to just accept hat your fear is an intrusive OCD thought and nothing else, which is so hard to do I know and I am still working on it. I have been taking 40mg of Prozac for the last 6 months which really really helps to fight the spiral thinking. I have had my OCD for over 30 years and panic and anxiety attacks really bad in the past year. CBT really does work if you get someone who understands OCD and anxiety. Stay strong. you are not alone. your branch of anxiety is really not unusual. I fear what if I go blank whilst I am speaking in front of a class as I am a teacher and the more I think about it and try to work it out, the mor I panic and the more I actually do go blank. the problem is that IBS is actually linked to stress so the more stressed you get worrying about going to the loo then the more irritated your bowels get and the more you need to go to the loo, therefore feeding your fears. Accept that sometimes you will need to go to the loo when you are stressed more than usual but this does not mean that you are going to always have a panic attack.There are so many CBt strategies to try. Please have hope. You are not alone. See your doctor. get help. try Prozac. try to distract yourself or delay your fears for a few minutes at a time. there is so very much you can do. do not despair. You will get better. Have faith in yourself. Good luck xxxxx

Babycham6812 years ago

Hi there I am having CBT at the moment and I have found it really helpful. I have had OCD for 28 years and it took a lot of courage for me to speak to someone. I always need the loo when I go out but only a wee as I will only do the other at home nowhere else. I panic that I will wet myself or be sick. I find that if I suck on a mint and talk to myself constantly to calm down I can cope. I would never ever go anywhere packed like a concert because of needing the loo. I have loads of issues of OCD but my councillor is amazing. I think u should ask again for help. I take anti depressants but I would never recommend pills to anyone else personally because I hate. Being on them. If you need someone to chat to I will help u. Take care xxx

12 years ago

Hiya,

I am sorry that CBT did not help, what I would recommend is to stick with CBT rather than look at treatments like NLP or hypnotherapy, which are usually ineffective for the vast majority and usually large amounts of money are charged by people with no real body regulating them!

What we know is that CBT does work, but for some people they might need 2 or 3 courses of CBT before the treatment works, the biggest problem is sometimes you need CBT by a therapist that is an OCD specialist.

There are OCD specialists available on the NHS at the specialist clinics in London, and the new one in Bristol.

My advice is to ask your GP to refer you back for more CBT, but ask they refer you up the stepped care ladder for someone more experienced. This link shows you the NHS care ladder to give you a visual idea of how people are supposed to be stepped up for treatment.

ocduk.org/iapt

Wishing you well,

Ashley

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