New here and in desperate need of help - OCD Support

OCD Support

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New here and in desperate need of help

EleanorRose profile image
6 Replies

Hi,

I am new to this forum (a 26 year old female who lives alone, in case that is relevant) and really struggling. I'll try to keep this brief but might not be able to! Sometimes I can be fairly sure it is my OCD that is causing things but I have reached a point where I am not sure if it is OCD or I am genuinely dying. I have various OCD 'symptoms' and 'obsessions' but the most severe centre around my health.

Brief background/context:

- In October 2006 I became convinced I had a brain tumour. Really convinced and utterly terrified. At the time, I knew nothing of OCD. I spent years googling, reading, checking my eyes/ears/memory and many other things.

- In March 2012 my brain tumour fear reached its peak and I was convinced I was going to die very soon. I couldn't leave the house and barely left the sofa, I wrote goodbye letters to loved ones and researched the symptoms of imminent death. After some weeks, I eventually went to the doctors but panicked and couldn't tell them all the details and symptoms I was experiencing. A few months later, I started seeing a counsellor - who thought I had OCD. I improved for a while.

- August 2016 my brain tumour fear escalated once more. I couldn't eat, sleep, spent a lot of time crying and was utterly, utterly terrified. It took a few months but eventually the fear decreased.

- I have an immense fear of doctors. That's not to say I would rather die. But the fear of 'dying', as in the process; not being able to carry on with my normal life, having to say goodbye to my family etc is unbearable. I can't face it.

- Earlier in 2018 I was having counselling for a mixture of things, not exclusively for this. She also confirmed she thought I had OCD (among other things)

Back to now:

- I have had an atypical mole on my back for at least the past decade, I remember the first time I found it. I've always been aware of it, made sure it's covered in the sun, lots of suncream etc.

- I've been increasingly paranoid about it recently - I know of someone (an online vlogger) who had melanoma which spread to become brain cancer. I went on holiday to somewhere hot (my first holiday in 3 years) a few weeks back and was worried about it then.

- I have reached a point of sheer, unrelenting terror, I cannot think of anything else. I have lost all appetite and am just trying to get through the hours of the day so I can go back to bed. I keep checking the mole and found a 5-year old photo of it and I think it looks different. I feel like every time I look it looks different. I keep googling and staring at photos. I can barely leave the house and when I do it is all I can think about. I know I should go to the doctors but I am convinced that in going to the doctors all I am doing is being told how many weeks/months I have left and I can't face that. I am going to see a counsellor next week.

I don't know what I am looking for - similar experiences, words of encouragement, I don't know. But if anyone can help in anyway I would be endlessly grateful.

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EleanorRose
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6 Replies
EleanorRose profile image
EleanorRose

Thank you so much for replying.

I know your experience has no real bearing on mine but, out of interest, have any of your anxious thoughts turned out not to be paranoia but actually real?

I know I have a mental health problem but am struggling to shake the fear that I might also have a physical health problem as well.

Sallyskins profile image
Sallyskins

This sounds like OCD to me. Not cancer. Health OCD is quite common amongst people with OCD. I've had it, on and off, for years, though on the whole my OCD takes other forms. As a child of seven I was convinced I had tetanus, and kept checking my jaw in case it had got stiff!

If possible, get the mole checked out. But resist the temptation to get it checked repeatedly. If it's all right, it's all right. The more you check it, the more you'll convince yourself there is something wrong with it. Most moles are harmless and remain so, even after a holiday. And the fact that you have been careful with it means that you are extremely low risk. It takes years of exposure to UV rays for moles to become dangerous.

Try not to google illnesses. A brilliant book called Three Men in a Boat starts with the author reading a medical encyclopaedia and convincing himself that he has every disease in it except for Housemaid's Knee!

I know it's difficult right now, but try to distract yourself with things you enjoy. Living alone is not the cause of it, but OCD can be isolating and if you don't get out much you are likely to obsess. There are books that can help and I suggest you get one of these.

Being so concerned about your health means that you are likely to notice every pain, itch or spot that most people don't give any attention to. All of us have these, and for the most part they don't mean anything is wrong.

I hope this helps. Try to eat well, as that is good for your health, but don't get obsessional about it.

EleanorRose profile image
EleanorRose in reply toSallyskins

Thank you. I do find your reply quite comforting.

I think you're right - the more attention I give it, the more I think there is something wrong. Every time I look at it, I think it looks different and I am looking at it multiple times a day! It can't possibly be changing by the hour, can it?!

Sallyskins profile image
Sallyskins in reply toEleanorRose

I'm sure that's right! The more attention you give it the more you think it'll have altered and it will just build up in your mind while in reality it's just the same, and it's just normal.

EleanorRose profile image
EleanorRose in reply toSallyskins

Thank you so much for replying.

EleanorRose profile image
EleanorRose

Thank you for your help :)

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