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Starting V&O treatment
Anyone have treatment similar to this opposed to starting venetoclax on cycle 2 of
obinutuzumab
?
Anyone have treatment similar to this opposed to starting venetoclax on cycle 2 of
obinutuzumab
?
roninwarior007
in
CLL Support
8 days ago
Obinutuzumab infusion and
Hi All had my two first infusions on Tuesday and Wednesday no issues at all despite some posts I have seen. Steroids did cause sleeping issues later but I did enjoy the pre meds. Blood results showed from Tuesday infusion showed slightly raised 222k to 232k. With get Bloods redone next Tuesday before
Hi All had my two first infusions on Tuesday and Wednesday no issues at all despite some posts I have seen. Steroids did cause sleeping issues later but I did enjoy the pre meds. Blood results showed from Tuesday infusion showed slightly raised 222k to 232k. With get Bloods redone next Tuesday before
TheFlyer
in
CLL Support
2 months ago
Brave young kiwi woman
A Young Mom Confronts “Skyrocketing White Blood Cell Counts”
https://www.patientpower.info/video/chronic-lymphocytic-leukemia/a-young-mom-confronts-skyrocketing-white-blood-cell-counts
Kylie's blog about her venetoclax +
trial https://www.courageloveandlegacy.com/
A Young Mom Confronts “Skyrocketing White Blood Cell Counts”
https://www.patientpower.info/video/chronic-lymphocytic-leukemia/a-young-mom-confronts-skyrocketing-white-blood-cell-counts
Kylie's blog about her venetoclax +
trial https://www.courageloveandlegacy.com/
Kiwidi
in
CLL Support
2 months ago
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Obinutuzumab and Venetoclax update
But you don't realise how slowly Cll changes things well I didn't anyway, so you go along thinking things are normal but there not once I had the 100mg sample of
Obinutuzumab
I felt different and after the rest on the 2nd day I was energised felt good but that might just be me.
But you don't realise how slowly Cll changes things well I didn't anyway, so you go along thinking things are normal but there not once I had the 100mg sample of
Obinutuzumab
I felt different and after the rest on the 2nd day I was energised felt good but that might just be me.
TheFlyer
in
CLL Support
1 month ago
Rash that won’t go away
I’m on the Pirtobrutinib , Venetoclax,
Obinutuzumab
trial for Richters. The rash looks like a salmon color bruise. It doesn’t hurt, itch, or change in size. There is no other rash on my body. It’s a curiosity that I wonder if anyone else has experienced?
I’m on the Pirtobrutinib , Venetoclax,
Obinutuzumab
trial for Richters. The rash looks like a salmon color bruise. It doesn’t hurt, itch, or change in size. There is no other rash on my body. It’s a curiosity that I wonder if anyone else has experienced?
Louie_CC
in
CLL Support
21 days ago
CLL along with hemolysis
i started OV treatment in April and have finished the cycles of
Obinutuzumab
. My Venetoclax dose has been changed a number of times due to counts.
i started OV treatment in April and have finished the cycles of
Obinutuzumab
. My Venetoclax dose has been changed a number of times due to counts.
Swanseacity
in
CLL Support
12 days ago
Update
🙄 He has given me notes on my treatment -
Obinutuzumab
and Venetoclax. Two days in hospital and and at least 3 in outpatients, to start off with. Oh and he's said go on your holiday now, and come back in 6 weeks. That's all. Love and blessings to everyone!
🙄 He has given me notes on my treatment -
Obinutuzumab
and Venetoclax. Two days in hospital and and at least 3 in outpatients, to start off with. Oh and he's said go on your holiday now, and come back in 6 weeks. That's all. Love and blessings to everyone!
Guffy
in
CLL Support
14 days ago
Obinutuzumab early update blow me down
Hi All Started this on the 9th. 100ml then remainder on the 10th July. No reactions at all bloods taken on the 9th after trial infusion showed slight increase from 222k to 232k. remainder on the 10th all ok had a blood test yesterday. WBC was 232k now on the 15th July 3900 Its amazing, unbelievable
Hi All Started this on the 9th. 100ml then remainder on the 10th July. No reactions at all bloods taken on the 9th after trial infusion showed slight increase from 222k to 232k. remainder on the 10th all ok had a blood test yesterday. WBC was 232k now on the 15th July 3900 Its amazing, unbelievable
TheFlyer
in
CLL Support
2 months ago
Treatment starts 9th July
Obinutuzumab
and Venetoclax 12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
Obinutuzumab
and Venetoclax 12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
TheFlyer
in
CLL Support
3 months ago
colouring hair on obinutuzumab and venetoclax
I have finished
obinutuzumab
and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
I have finished
obinutuzumab
and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
Geministars
in
CLL Support
6 months ago
Obinutuzumab not recommended for funding by NHS England
You can read more about
obinutuzumab
and this decision on our website: https://lupusuk.org.uk/
obinutuzumab
-not-recommended-for-funding-by-nhs-england/
You can read more about
obinutuzumab
and this decision on our website: https://lupusuk.org.uk/
obinutuzumab
-not-recommended-for-funding-by-nhs-england/
Debbie_kinsey
Administrator
in
LUPUS UK
8 months ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164 Title: COMBINED PIRTOBRUTINIB, VENETOCLAX, AND
abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164 Title: COMBINED PIRTOBRUTINIB, VENETOCLAX, AND
SeymourB
in
CLL Support
4 months ago
Chemo-Free Triplet Yields 68% Response Rate in Richter Transformation
Atezolizumab, venetoclax, and
obinutuzumab
combination in Richter transformation diffuse large B-cell lymphoma (MOLTO): A multicentre, single-arm, phase 2 trial. [i]The Lancet. Oncology[/i], S1470-2045(24)00396-6.
Atezolizumab, venetoclax, and
obinutuzumab
combination in Richter transformation diffuse large B-cell lymphoma (MOLTO): A multicentre, single-arm, phase 2 trial. [i]The Lancet. Oncology[/i], S1470-2045(24)00396-6.
Classicaljazz
in
CLL Support
2 days ago
return of immune system
I was told my immune system would return one year after the completion of
Obinutuzumab
infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
I was told my immune system would return one year after the completion of
Obinutuzumab
infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
Cllinmaryland
in
CLL Support
7 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had
obinutuzumab
too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
My hubby's treatment is venetoclax and acalabrutinib (he previously had
obinutuzumab
too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
spi3
in
CLL Support
6 months ago
on watch and wait for 6 years. Numbers are going up and doc this treatment is coming
My doctor suggested a combination of
obinutuzumab
and venetoclax or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
My doctor suggested a combination of
obinutuzumab
and venetoclax or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
elm1
in
CLL Support
7 months ago
What to do? a very enlarged spleen & very little money for treatment
My options may be 1) Ibrutinib, Acalbrutinib or Zanubrutinib, or
Obinutuzumab
plus Venetoclax (following NCCN guidelines) or 2) removing my huge spleen (8 x 3.5 x 5.5") , a surgery not done as much now as in the past. The meds reduce the spleen, but are super-expensive.
My options may be 1) Ibrutinib, Acalbrutinib or Zanubrutinib, or
Obinutuzumab
plus Venetoclax (following NCCN guidelines) or 2) removing my huge spleen (8 x 3.5 x 5.5") , a surgery not done as much now as in the past. The meds reduce the spleen, but are super-expensive.
LadyLuckyLuna
in
CLL Support
5 months ago
Almost to the point of despair. Sorry for this.
I'm only a few days away from starting the
Obinutuzumab
treatment and then O + V but I'm already in a stage of despair. Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum.
I'm only a few days away from starting the
Obinutuzumab
treatment and then O + V but I'm already in a stage of despair. Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum.
BMFCDRW
in
CLL Support
6 months ago
Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/Acalabrutinib-venetoclax-and-
obinutuzumab
-in?
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/Acalabrutinib-venetoclax-and-
obinutuzumab
-in?
AussieNeil
Partner
in
CLL Support
5 months ago
Diagnosed with Richters
I’m now in mid Cycle 3 of the Venetoclax, Pirtobrutinib, &
Obinutuzumab
trial. I’m tolerating it very well. Almost all my blood work is now in range with platelets low at 116. I get another PET/CT and bone marrow in 2 weeks to determine how it’s working.
I’m now in mid Cycle 3 of the Venetoclax, Pirtobrutinib, &
Obinutuzumab
trial. I’m tolerating it very well. Almost all my blood work is now in range with platelets low at 116. I get another PET/CT and bone marrow in 2 weeks to determine how it’s working.
Louie_CC
in
CLL Support
1 month ago
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