I have just come off my Sulfasalazine. Do not panic I have had expert help from my GP. Yes my joints are excruciating if they are knocked and I am stiff and in pain. However I am finding that I feel so much better with a clear head, no breathlessness and mentally back to my previous self before I was diagnosed with RA.
I seem to have an open window - my only open window to try for another child. I am 35 and so this is the last chance to try. I do not want my 4 year old to grow old and alone when me and my husband has passed (morbid yes but realistic). My doctor agrees this is my final chance of carrying out our family plans.
Obviously I am concerned. I am hoping because I have a negative factor of RA that I can perservere for 3 months until the Salfasalazine is out of my system. Apparently one can still be on it but there are risks which I am certainly not interested in. If I manage to get to get pregnant again I hope my RA will go into remission.
There are alot of "if's", "but's" and "maybe's".
I am on DLA because it applies to me. I am the sort who thinks I would burn in hell if I mislead the system. I am worried about the loss of money if I am better - which is ridiculous because I want to be better but I would loose so much help it gives me like equipping the kitchen with RA friendly items, helping me run a tiny car to get my son to school because I just cannot walk very far anymore.
I kind of feel on the edge of RA. Because I am a negative factor I do have better days than others. I have the flare ups and have to walk with a stick at times or can barely hold my coffee cup.
I decided to post my thoughts because my thinking is worrying me. It is eating me up inside which is never good. I do not have a question as such, just wonder if I am the only one to be in no mans land/difficult situation.
I constantly fight against RA because of my dad - I will not put all my eggs in one basket because one day I may need them. He is out of options and in terrible pain at he age of 65
I am very aware that some cannot have the luxury to come of their meds. I havent been put on anything too strong for the fact I do want another child.
Afterall of this I may be too ill to have another child - just need to get it all straight in me head.
My thoughts and waffling done. Claire