Today I just can't cope ;-(: I'm so sorry to write such... - NRAS

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Today I just can't cope ;-(

Ella32 profile image
26 Replies

I'm so sorry to write such a morbid blog. I can't even bring myself to write whats wrong today, but I just needed to tell someone...Today I just can't cope.

Love to you all xx

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Ella32 profile image
Ella32
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26 Replies

Some days this horrible disease is so overwhelming that it seems we can't go on, it doesn't help when the day is damp, cold with no sun!

A better day will come along so "hang in there" you're not alone & we've all had days like this.

Be gentle with yourself & do what ever you can to feel good about yourself.

xx

Tillytop profile image
Tillytop

Hello Ella

I've just logged in briefly and seen your post and just wanted to say I am so sorry you are having such a difficult day. There is no shame in admitting that, today, you can't cope. Even though you don't feel able to share the details Ella, I am pleased you felt able to post so that you can know that people are thinking of you.

Tillyx

Heya Ella,

I'm sorry you're feeling awful and I think we can all relate to you on this site! I'm thinking of you and am really hoping you'll feel a little bit better soon!!

Christine X

helixhelix profile image
helixhelix

Sometimes all you can do is admit (temporary) defeat.....I hope you get through the day ok, and can start again tomorrow feeling brighter. Polly

allanah profile image
allanah

Hope you r ok, thinking of you Ax

Josie2 profile image
Josie2

Sending hugs. I think im just coming back from that dark horrid place of finding it hard to cope.

Take care, rest and look after yourself.

Jo

Xxxx

sylvi profile image
sylvi

Ella my love your not alone in feeling rubbish,i am feeling the same. Lets praqy for some sunshine tomorrow and then we will all feel better. Sending hugs your ways.xxx

Oh yes Sylvi is so right. I always feel more able to cope when the sun is shining. We've all been where you are and we all understand. This is a rotten, despicable, hateful disease. Love and gentle hugs to you Ella and to you too Sylvi

All the best

Jo xxx

claireyj profile image
claireyj

Tomorrow is a new day Ella ....take care of yourself Claire x

Riedenise profile image
Riedenise

Bless You Ella, we are all thinking of you And send you hugs

Im only into week three of treatment & feeling pretty rough at times. Not everyone out there understands but coming on here & reading other peoples blogs, listening to advice & sharing things helps me get through my hard days.

Love & Hugs to all that need those extra ones today.... Rie x

Rita56 profile image
Rita56

Hi Ella,Sorry to hear you are feeling unable to cope today.I think we all feel like this some days,me included,so please don't feel alone.I get days where I feel so dreadful,in pain,unable to do anything but lay on the sofa.Try to look forward to better days,sunshine coming which always makes us feel more cheerful.Sending you some gentle hugs.xx

hamble99b profile image
hamble99b

hi ella, just know you are not alone. pm me if you want to.

regards,

sandra.

Ella32 profile image
Ella32

Hi girls

Thanks you so much for your words of love and care.

I am waiting for a telephone call to say whether my hip replacement has a problem, i have been in pain in my groin for 2 days and so had a xray today and my surgeon is going to look at it this pm and call me to let me know - apart from the thought of yet more hip surgery now, being horrible, I am in the middle of surgery to fix and fuse my ankles, which need to be finished before I should technically move on to a hip revision! But if my hip is a emergency it has to take priority - all this on top of my father in law passing a way badly last week, a much in need mother in law and a husband that deserves ME to be there and support him for once (not the other way around)! It all just feels overwhelming - but to have you all reminding me i'm not alone and that tomorrows it will all seem manageable is a great comfort. It feels as though we really do all understand this nightmare illness and how important it feels to not be alone!

Love Ella xx

shirlthegirl profile image
shirlthegirl

Ella really hope you are feeling a lot better tomorrow, Take Care xx

126Jessie profile image
126Jessie

I hope everyone on here has lifted your spirits and that you feel better tomorrow Ella. Sometimes it's good to let it all out and start again fresh the next day. Much love x

petalnumber2 profile image
petalnumber2

Hi Ella,

I,m having a bit of a bad day myself with painful knees and wrists and feeling so tired, but reading your blog and all the lovely comments you've received has made me feel so much better. Everyone sends such lovely messages. I presume you have had RA for a some time to be at the stage of surgery on your ankles and hips. Here's hoping your Xray results are good.

There's so much truth in the saying "time and tide waits for no man" and family life still goes on no matter what, doesn't it. I really hope that everything works out alright, and you feel better tomorrow too.

All the best, June xx

Yoy poor thing dont be too hard on yourself I am sure you are more than supportive and he is so aware of your problems and knows that you would support even more if you could. I hope you get a positive phonecall from ths consultant.

All the best thinking of you.

Hoping trhigs are better tomorrow.. this disease can be beaten sometimes is what we have to tell our selves. I get down too we all do its a difficullt thing to deal with you..

You will get through it all, remember to take small steps, write lists of everything that has to be completed, but most of all rest when you can. I do hope that tomorrow will bring a better day for you, if not we're all here for you. xxx

watson3 profile image
watson3

Thinking of you..... I effluent rotten today so three so stayed in add most of the day. Glad you have had some lovely answers from our friends.

Dotty7 profile image
Dotty7

You poor thing. You have so many things to deal with. I hope that some of them start to resolve soon.

Love, Dotty x

FEARN2261 profile image
FEARN2261

Feel better sweetie,sending hugs,xx

Craw profile image
Craw

Hi Ella

Hope you are feeling a bit better today.

Sending you a hug.

Mary x

mille profile image
mille

The sun will shine again Ella. Stay strong x

selina profile image
selina

Only just read your message. Hope all the good responses are working for you. Be kind to yourself. We all strive to be super human but never achieve it. We all need some help & understanding from time to time. I hope you manage to find the right support to get thru' the bad times. THINGS WILL GET BETTER - BELIEVE!

Ella32 profile image
Ella32

Hi Girls

Well my call came, and it seems that my hip is showing some wear, but after 17 yrs inside me I guess it had to be wearing hey? The good news is nothing emergency is wrong with it. When I heard the news I crieds and got completely anxious, but now it has had a chance to settle in i feel better - I don't want you to all think I am just kidding myself but i am just trying to look more philosopically and be positive, If my surgeon had turned round to me and my parents when i was 16 and said "Ican give u 17 pain free yrs on your hips, then a little work on them, then more pain free yrs" we would have been over the moon, so i'm thinking that I have actualy been dam lucky! Today, yes the sun is out, but I am also feeling that worrying about it won't change it and when I couldn't feel that I realise just how lucky i was to have you all there to support me! xxx

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