I am very frustrated at the moment. You all know the saga of my knee,well i have been getting on real well with it until this week. I got dropped of in the village by hubby while he went to his computer course so i went and paid my papers and started to walk home. Well the short version is my daighter had to bring my scooter to meet me as i couldn't walk. |A friend of mine who knew about my progress saw me and came to meet me,taking my bags off me and putting his arms round me to help me. Got home and daughter told me to ring her to let her know i was home safely. Well when i rang her i broke down crying as i felt so frustrated with myself.
Well yesterday hubby dropped me off in bedworth so i couls have a wander round the market. I intended to catch the bus home, so the bus was just pulling out as i got there. SO i decided i would walk through the town and stop and have a coffee,which i did,but realised i couldn't go any farther,so rang home to get them to get me. Grace came into the cafe and took my bags off me and helped me to the car,which hubby had parked close to the cafe and of we came home. After that i rested until after lunch and i then enjoyed a couple of hours in the garden just tidying up.
This morning,well what can i say,i am in agony. From what i don't really know. My fingers and wrist hurt like hell and they are very warm. My knees and my right ankle have decided that they want to join in the fun and hurt me as well. To top it all off facebook is being a pain in the rear as well. I am begining to wonder today if i should just curl up and wait for tomorrow and pray i have a better day.
I pray you are all in a better place than i am today. xx
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sylvi
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Hi Sylvia, So sorry you are having a rough time of it, I have just done some light dusting and put the washing on the line, as it is a nice bright sunny, but windy day today here in Wales, nothing too strenuous, but I am now sat down, out of breath, and my hands, shoulders, back, ribs, knees and feet are all answering back with a vengeance.
As you know I have not been diagnosed with RA, but suspected sarcoid arthritis, I also have Fibro since 2001, but had the symptoms much longer than that.
So sorry to hear how much you're suffering at the moment Sylvi, it seems so unfair that you're having to take things so steadily and still you're paying for it. So hope you can find a warm spot to relax and restore, I'll be thinking of you today xx
facebook's always playing up - it's usually because of site upgrades and it eventually sorts itself out again.
i know exactly where you're coming from when you feel frustrated not being able to go far it's one thing i really miss, being able to go for a walk in the woods and see the squirrels and any other wildlife, my hip and ankles won't let me go far now - plus the ground is uneven and i can't walk on it anymore! i can't carry bags anymore either so when i go out i must use a shopping trolley - i can't even carry a bottle of milk without being crippled with pains - my mam has had to come and get me to carry my bag more than once.
it's an awful disease and the meds are just as awful - this morning i was in so much pain i couldn't even hold my phone and i was dreading the day, but after the painkillers, and doing embarrassing little (free ranging, feeding and cleaning the girls cage out i'm so tired again i want to go back to bed!
i hope you feel a bit better after a rest - maybe a hot water bottle would help your knee? heat is good for stiffness and pain but it doesn't seem to help. with swelling sadly.
Hang in there Sylvi, not too long and you will have the sunnier days that you and your body enjoy. Just rest up today and try something easy tomorrow, if not do short bursts then rest. Take care xxx
Thank you all. I really hope i feel better tomorrow. If i am not i will be going to the drs pronto, as i need to know whats wrong with my feet as well. I hope you all are well.xx
Wishing you better very soon Sylvi.I understand your frustration.I used to be always on the go,energetic and now it's like I have taken root on the sofa.Can manage a few things but not very much.Can walk a few steps but it's so painful.Wish I was the person I was,who could walk for miles,horse ride,clean the house etc.Now I have to rely on my husband as my carer.I hope you are feeling better very soon. xx
I know what you mean,i was doing so well with the walking and it is very hard sitting and let someone else do what you used to do,feeding cleaning the whole lot. I do wish i could be the person i used to be as well. I hope you soon have better days.xxx
hi sorry to hear your having such a hard time sylvi . i so know were your coming from. last night was in bed for for ten coz i was out today for lunch and few drinks did manage but now sat on sofa. i am like a little old lady !!!!!!!!!!!!!! hope you feel better soon take care be thing of youxx
Thanks mads,caroline. I will be fine i hope. It has been a bad day and a strange one as well. I will go to bed and sleep and then tomorrow will be another day.xxxx
Hello sylvi, My heart goes out to you because I know exactly how frustrated and disapointed you must be. Just suddenly not being able to walk any further is terrifying, it's happened to me a few times and the last time I was with my husband who was in his wheelchair. We were returning to the car park after both had optician's appointment, I got half way back and just couldn't go any further, so he gave me a lift on his lap in the wheelchair.
Thinking about it, I have never mentioned it to my rheumy doc, but perhaps we should. You are the first person I've heard say that it has happened to you. This is one hell of a disease isn't it, it sometimes takes away so much of our precious independence. If nothing else, it does help knowing that we are not alone. Take care sylvi. June xxx
June, it certainly does take so much away from us. Yesterday i had a huge flare and i was the worst i have ever been and to top it off this morning my tinnitus has gone off and i am all over the place my head is so dizzy. I bet you both looked sooo funny with you on your husbands lap getting back to your car. Sorry i shouldn't laugh,but laughing is only thing that gets us through doesn't it JUne. I bet you both laughed afterwards and i hope that it eased it for you. It is the first time it has happened to me and i am sure in the future i too will laugh. xxx
Sorry Sylvi, two days have passed and I've only just read your reply, so I hope you get to read this!
Well, you've obviously got a vivid imagination picturing me sitting on Ian's lap in his wheelchair. I'm glad it made you laugh because it's the best medicine, don't you think. We did get a few stares and smiles, but guess what, we had to do it again in the middle of an aisle in sainsbury's a couple of weeks ago. It felt like my feet were screaming at me to get off them and Ian said hop on kid and give your feet a break !!! Well people had a laugh and a joke with us and I couldn't help but giggle. I do hope you havn't had anymore halting experiences.
P.S I forgot to say that I hope your big flare has eased off, you've had such a bad time of it lately, and yet you've always got a cheerful word to say to us all. Bless you Sylvi and take care. xxx
I agree there are some days that should just go away...so hope that you're now tucked up waiting for a better one tomorrow. Spring's nearly here! So hang on in there, and concentrate of the successes, like the pounds you've lost which is great. Pollyx
Bleading nora sylvi RESTUP AND TAKE IT EASY FOR A BIT
you have done it again after me telling you the other day the last one took you out true style
you must admit that was a bit of a push to far sylvi
could you not have paced it a bit better than trying to do to much in one day like having a sit for a bit then starting again i know you frustration
i mean i know from your blogs your limitations in distance roughly
and that sounds like 3 times the length of what you usualy do into the village.
BUT THEN IVE SOME ROOM TO TALK.
MY knee is being a decent little boy today but i dont trust the bugger so im pacing it a bit today as me arms having a bit of an ache after hanging from the bar i have in the garage which streightens me up a bit LOL
HOPE THIS DOSNT SOUND LIKE IM TELLING YOU OFF XXXXX
John no your not preaching me,so don't worry. It is a walk i have done before and i have not had the problems i had thursday. It is a walk i have done several times. Things have been very different since thursday. Yesterday i had a very bad flare and i felt so ill. It eased off by the evening after i went to bed,but this morning my tinnitus has gone crazy and the room is spinning. I just wonder what the hell is going to happen next. It is sooo frustrating john i sometimes wonder what the hell.
I am off to rosemary conley this morning and then i think i will ring thr drs and see what they say. Take care john as i believe it is tomorrow for your op or is it thursday. THyats another thing i have fibromyalgia and it is clouding my memory so please bear with me when i say i can't remember. Take care.xx
yep if i had your number i would have phone to see how ya wear i got quite worried over you feel like i know you quite well with your blogs
cut down on the fags a bit yesterday doing me no good silv smoke half then nip it but its hard but then shirl has managed it
no what ya mean about ringing in ears my left one i ignore it
getting no pain in that knee till late afternoon but me ankle was realy hurting bad yesterday so i put one of them straps on it after 12 months of continuing my exersises off every one i know things have paid off and i think me body thinks this is the norm and accepted it apart from the ankle that is so im going to strap it again today to go into leigh
my feet have been a bit better with rubbing that SUDOCREAM on them which i got from carol next door. wonder why me ankle is going inward yet me knee not troubling me as much probably tibia nerve trapping this can be a problem in the ankle.
ps im relying on YOU and SHIRL with a bit of TILDA thrown in for good messure to keep me sain for the next couple of days
If i can't move john i will still be here on the good old laptop and i will keep you going don't you worry about that. As to the fags as you call them i hope you are able to pack them in. I have seen my dad die due to them and let me tell emphamsemia is not a nice disease.
I will keep reminding you john you will be fine,i should know i have had that op so don't worry. sylvia.xx
now the old thing is kicking in i will have a word at the hospital that day and tel them me ankle seems to be hurting more on the bad leg
ive compensated so long now in 12 months that me body thinks its the norm for the 1st hr lol
i just hope im able to pull back to where im now with it if im wrong and its a back or ankle problem or some other inflamatory thing go to give blood at 10 am so im starving
John they will check to make sure anyway. stop worrying my friend. I am having a crap day today and i hate admitting it i really do. I'd feel better if they take me down the knackers yard. I don't think it can get any worse than it is today. Anyway i have you here to keep goading and you need me to keep remining you that you'll be okay.xx
Funny ha ha john. I have just got back home from weight class. I have stayed the same,but the reason i'm home early is that i have been sick. I get this with tinnitus sadly. I've just rang the drs for a script as i have had this before.I've to ring back later.I feel so rough john i hate this bloody disease. THank god for my hubby as i couldn't cope without him as i'm sure you have the same with your wife.
It was an interesting programme on richard the third and it was very local as it is at the end of the m69 it is only ten miles from where we live. xx
been giving the old blood and bloody thick stuff it was to
and just had me poridge then im going out on me tod for some dinner in leigh and get some of me bike photos done (billy no mates today) geanors out with their shela i call it pension day their shiela has oa and ra and she has had big c i dont know how she walks with her deformed feet but she has had it 30 years now
so little me gets no pitty cos she has seen their shela well its her aunt realy
so she thinks me im dreaming at it compared to their shiela LOL
i know what ya mean about hubby and coping i struggled a bit in the early time with this last may and dont know what i would have done without her .
she whent to vagas last year for 10 days for her 60th with her mate they had planned it for a long time and i said have 3 weeks i will pay then i go to tt and gp for 2 weeks so we dont live in each others pockets so to speak
i have seen so many jelouse hubbys in the past that wont let thir wife through the door without them
but these daysi must admit when ya off a bit i miss her.
the program on richard the 3rd was realy good watched it twice and gaenor sister jill is a member of the sociely she is always down their in london at the meeting
I like that you both are able to do things separetly. I do go out on my own like up the village or to bedworth which is nice. We do holiday together and we are one of those people who are happy just on our own,but we do like socialising as well. Nobody knows what ra is like unless they suffer from it as well. My hubby bless him is so upset when i'm bad as he can see the pain i'm in,but he can't do nothing to ease it.
I managed to speak to my son this morning which was nice. We spoke via skype and he was telling how nice it is over there. We also talked about that ship in the states that had that problem last week and how well the crew did in looking after their passengers. George works for that cruise company and it is the same company that owned the costa concordia that went aground in italy.
Sorry i'm not much fun today john,just hope i feel brighter tomorrow.xxx
ya will be sylvi its like it startss of a good day then shit happens just been down the garden see if its dryed out a bit no such luck
still boggy
million and one jobs to do but cant get round to them walking back even with the ankle strap on it hurt but still going up leigh I SHOULD STAY IN BUT BUGGER IT IF IT BRAKES IT BRAKES AT LEAST IVE HAD A DAY OUT
SONS JOB LOOKS GOOD GET TO SEE A FEW RAYS OF SUNSHINE EH AND FREE FOOD CANT BE BAD
tell you who we have not seen a lot of on here of late is HEATHER with the horses i wonder how she is doing or is she feeling a bit deppressed about blogging on here
your sort of the same as us two dont live in one anothers pocket which is a great way to be .
that skype is realy good for cheap calls.
me today feel like lots of energy but tell ya what im missing me own mix of tablet thats for sure.
but will brighten up when i watch tt legends part 3 tonight on tv its all about the north west 200 in irland place i have not been but would love to go
met a guy in a bar in dublin some years ago on hols with a girl from down the road to us st helens and he said he woul email me and i will he said but he must have lost me card
said i could stay with him he was only 2 miles of the track.
realy would have loved to have gone and done that.
what realy wees me off is i had so much planned for us both this year and its all cone up in flames usa spain tt gp and i was going to get a flight to savil wanted to have a look round their this year ah well as they say maybe this year some time.
if i had fell of the bike could have accepted this but not to be
when i get better i will be wanting to fall off to see if i hold together LOL
have you not tried getting a cheap cruise through your lad slv?
I don't think i can travel that far according to my son,but i would like to,also don't have a passport at the minute. Keep thinking i ought to renew it and then something else pops up and we forget. Take care on your trip to leigh and don't go bloody falling over john or else you will in more trouble than your already in.xx
Yes i have been there and its not far away.I live in bulkngton just outside nuneaton. There is something for you to look at on bing. If you go on google earth you will also see my house.xx
looks verry nice especialy the ponds i love looking for wild life in ponds as a kid spent hrs bird watching brilliant time i had now we are all bilt up round here
just looked at that pond again up that farmers lane can get their by car dont know if its private fishing or not but get me up their in summer with a book to read and take in the rays looks beutiful round their sylvi
get hubby to take ya with ya deck chair in the summer chill and take in the rays bit of vitamin d grrrrrrrrrrreat
we have leigh penington flash near us thats brill to on a good day
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it's one thing i really miss, being able to go for a walk in the woods and see the squirrels and any other wildlife, my hip and ankles won't let me go far now - plus the ground is uneven and i can't walk on it anymore! i can't carry bags anymore either so when i go out i must use a shopping trolley - i can't even carry a bottle of milk without being crippled with pains - my mam has had to come and get me to carry my bag more than once. 
Bad pain under bottom, can't walk properly.
