Does anyone on this forum get treatment for RA at the Western General in Edinburgh? I would like to compare notes in confidence.

[cathie]

[asasmum]

Sorry Cathie I dont, but I would be interested if there was anyone on this forum having treatment from Derriford Hospital?

Asa's mum x x

[Sailaway]

Hi Cathie, Yes. I see Dr Lambert there - you can PM me if you'd like to.

[cathie in reply to Sailaway]

I think I've sent you a message but it went a bit funny

[Sailaway in reply to cathie]

I didn't get it Cathie, I'll keep a look out for another one.

[bencar]

Maybe we could all compare notes if we were to find someone on here attending the same clinic..

[cathie]

Do you go to Western General in Edinburgh? I looked you up and saw you live near Glasgow so I assumed that you go near there? I've sent my message to one reply, but its best discussed privately - am happy to message you!

[bencar in reply to cathie]

Cathie, I now live in England, I was brought up in a wee town 20miles from Glasgow, missed it so much, now have a holiday home on the outskirts of my hometown.

[cathie]

I can imagine you missing Scotland how could we live anywhere else!

[dannyt]

Hi cathie I attend the new stobhill hospital which is closest to my little town of Kilsyth away out in the sticks. You can compare notes with me if you like information is power and all that. I am currently awaiting results to see if my body is rejecting Humira as had nasty side effects over Christmas and New year. Kindest regards Danny.

[cathie]

That's kind Danny. I'm in the middle of a sort of dispute with a consultant at western general who took me off all my meds because she thought I had lupus and was in remission anyway. I had the skin reaction which might have been lupus checked at nine wells in Dundee where they have a great photo biology unit there. After the withdrawal of treatment I gave her more info and she allowed me to go back to methotrexate but not the anti tnf. Since then I've been trying to see her or another consultant. I've seen the rheumy nurse who I think could see I wasn't in remission and tomorrow I'm seeing the registrar of the consultant I'd like to transfer to. Once I've got treatment reinstated I'm thinking of raising a complaint against this doctor who has disrupted treatment that was controlling my RA well. The aim would be to get the doctor to take more care in her lofty pronoun cements. I'm also wondering if there's a more general problem at the western, at least in rheumatology. The admin seems chronic, they've mislaid correspondence, got facts wrong and the appointments system is chaotic. So any complaint would aim to stop this happening again.

I'm sorry to hear about your problems with humira and I hope it gets sorted, is it blood tests they're doing? Can sympathise as I'm in quite a nasty flare without my anti tnf.

You're in a lovely place!

[dannyt]

Hi cathie I hope you manage to sort things out I could go on and on about some doctors so I certainly wish you well and that their egos allow human lessons to be learned. All the best.

[cathie]

I've written a blog about the consultant I saw today who was a real human being. Thanks for your support

[Mmrr]

Cathie, hello I'm new to this group and noticed an old post from you about the WGH and wondered if I could have a private chat ?

[cathie in reply to Mmrr]

Yes can you message me?