Well infusion booked for 25th .: after being in pain... - NRAS

NRAS

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Well infusion booked for 25th .

pottypam profile image
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after being in pain and stiff and so very tired for some weeks, My meds changed then changed back .Can not have my usual steroid injections as my INR level been to high ,and oral makes me so much worse . So after a failed attempt nearly a year ago to give me Rhixi as after 8 attempts by nurses they gave up they are going ot try again but my RA consultant going to be there and do it himself.

I am hoping so much this works even just a bit as seem to be going backwards but then my stenosis in my neck and lower back have got worse , so seems swings and rounderbouts . If the Ra and Oa get bit better my neck and back will get worse , typical .. But hope this treatment helps my hands and maybe the muscles around my neck as it hurt so much and aches my shoulder and gives me a terrible headache . So am optimistic that I will have a good xmas this year , and get out and about a bit . As at mo I do not even want ot pop to the shop, or go to town and have not gone to a usual drink with friends as tooooo tired and aching ,feel not good company . So roll on the 25th and the 9 th Dec then roll on xmas ,cos fun I,m a coming ... I hope loll xxx

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pottypam
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sylvi profile image
sylvi

I too don't feel like going out due to the pain. I don't know about you i get sooo fed up with pain and the energy it takes to go out. You can't win whatever you do can you. My xmas will be different this year as my son is away working on the cruisenships, so we'll have to think of something different to do this year.

Take care and i hope the infusion works well for you.

Sylvia.xx

Good luck with the infusion x

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