Hi All, bit of an emotional wreck at the moment and unsure whether I'll qualify to have dealings with NRAS much longer, having only just found the comfort and friendship of the site. I went to my rheumy appointment this week fearing what side effects I might get from any change in meds but very much looking forward to hopefully getting my life back sometime soon. Instead, I've been told that there's a good chance they've been misdiagnosing me for 15 odd years and what they thought was sero neg with a bit of osteo thrown in for good measure might be fibromyalgia (finally diagnosed a couple of months ago) and a rather aggressive form of genetic osteo. I'm now awaiting an X-ray appointment to check the deterioration in hands and feet since last time and see if any of it looks RA related and an OT appointment to teach me how to use my hands (?!). Instead of changing my meds to something more effective I face the prospect of them reducing what's been effective so far and booting me out the door to fend for myself. I'm usually pretty stoic - as I mentioned in a previous blog, I'm sometimes my worst enemy when meeting medics as I try to put on a bright face, but I actually started crying at this appointment and have found tears quite close to the surface ever since. Trying not to get too bleak until I know the score for certain. Whoever thought there'd be cause to be upset at finding yourself RA free?
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