tired and hot.: Hi everyone, here i am having lost... - NRAS

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tired and hot.

sylvi profile image
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Hi everyone, here i am having lost sleep again. Rang ra nurse this morning and got told i have to rest. Got to see gp ref my breathing. I am ashmatic and when i start to do things my breathing gets harder. my ra nurse can't tell me if its ra or fibro thats causing my problems. Her words were its either or, my hand is very swollen. I have to up the steroids for 3 days and see how i am. Cannot see gp until friday, thats because he's the best gp in the practise(my thoughts about him). If my chest is clear then i have to see about a x-ray, that means i might have to come of mxt, thats for the future.

I have been to bedworth and got some xmas presents, i know i can hear you all groan, but i have to get them when i can. I have had to give up so much that i don't want to give that one up.

I stripped the bed and hoovered the mattress, yes i know overdoing again, i'll never learn.I have rested ever since. Tv is rubbish, am sick of playing solataire.

Think i might try and wrap a few presents later.

We are going to a wedding in cambridge at the weekend. Am looking forward to that as its a family affair. Got the hospital earlier in the day. That should be interesting, will let you all know after the weekend.

Well thats me finished waffling, i'll go and give you all a rest!!!

Sylvia

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sylvi
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Missy profile image
Missy

Dear Sylvia

Oops, just realised that Bedworth is a place and not your bed! Glad you had a good day out, it feels satisfying when you can tick somethings off the list. Christmas shopping is a nice way to do this!

I had a lovely lunch with my friend, she cooked, lovely... and she removed my chipped old nail varnish for me! (My husband would have considered this a step too far !)

Hope the weather is kind to you all at the wedding. The beauty of not drinking is that you can laugh at others when they have had a few.

Hope the steroids kick in for you.

Missy / Anne x

sylvi profile image
sylvi in reply to Missy

Anne you made me smile when you thought bedworth was my bed,nice thought. I don't miss the alcohol even with the history of it in my family. Thats another story for another time.I slept well last night,i think i was that exhausted i just collapsed into sleep,after watching a bit of tv. The wedding is going to be a long day.The event starts at ten and then who knows how long it will go on.My hubby does change my varnish on my feet for me,i have false nails so they get done every three weeks,but i change the colour myself.

Sylvia. xx

hello sylvia

there seems to be no let up does there? hopefully the steroids will do the trick. i know what you mean about overdoing it, it is so difficult not to get a few things done when you feel you can, it is just the repercussions that are so dire.

i normally would have groaned about the christmas shopping as i usually get into the festive season 2nd week of december and enjoy running arround like a headless chicken trying to get everything. this year i will be starting early - very worried about money though. RA costs so much, more petrol in the car and just got a cleaner for a few hours a week and wouldn't be up to doing any additional work that i would have normally done.

can't sleep tonight feel abit uptight - prob steroids

sylvi profile image
sylvi

Mads, I'm not allowed to drive at the moment so i let my car go,i had a mobility car and as it was sitting in the garage costing me money i hadn't got so yes i know where your coming from about money. My daughter gives me housekeeping every week so i save that for xmas and holidays,do the same with my son when he's here. He is on the cruise ships until march. My husband is considering retiring because he worries about me being here on my own,that is money allowing him.I'm unable to work because of all that is wrong with me.

I've not been toppo for the last week and i ache,but i can't tell you why. I think this unpredictable weather has a lot to do with it.Husband just gone to work and i got up with him as i slept well last night. My head doesn't feel too bad,the rest is just knackered,if you chopped me off from the shoulders down i'll be fine.

Take care, Sylvia. xx

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