If you're in Paris on World Arthritis day.... - NRAS

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If you're in Paris on World Arthritis day....

helixhelix profile image
7 Replies

There is the 12th Salon de la Polyarthrite (bit like an exhibition of rheumatoid arthritis) with lectures on interesting subjects by rheumy and physio's and so on, stands selling all sorts of aids, discusssions about living with RA, sale of donated stuff (by shops like Christian Dior) to raise money for research. And even a tombola - which I thought was a v English thing! And there are similar mini events in other regions of France at the same time.

af-polyarthrite.net/salon20...

Now wouldn't it be nice to have something similar in England?

Unfortunately I can't go, but maybe next year.....

Pollyx

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helixhelix
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7 Replies

That sounds really interesting, wish I could go now :-( I wish more would be done to educate people in this country too

That's great that it's so well profiled in France Polly. Strangely enough World Arthritis Day has been on my mind too. I thought I'd hassle a bit locally to get stuff onto our local BBC station because they've covered cancer umpteen times and MS and diabetes and had a week dedicated to Falls for National Fall Awareness week. I spoke to someone yesterday at our local Voluntary Action about setting up an RA group. She advised me to first contact our local Arthritis Care group so I've been trying all day to get through to these two women but no joy. On the answering machine I hear two elderly sounding voices and am trying not to think that it will all just be about Osteo with them - trying not to allow it all to become an ageist thing but really I want the group to be for younger people with inflammatory arthritis rather than just RA because I sense there would be very little uptake from local younger sufferers and somehow I feel they must feel very isolated up here. Hope I'm wrong though on every front! TTX

tiger profile image
tiger

Shame, there isn't an event in the midi-pryrennes where I live. I quite fancied whizzing over to Martinique for the event over there but OH said NO. Maybe we could we could both to the one in Paris next year!! Wendy x

helixhelix profile image
helixhelix in reply totiger

Yes, I saw the Martinique one too....but piggy bank is a bit too thin. I came through Paris the other day and there were big posters up in the metro for it. I was rather amazed that RA has such a profile! Px

lifebeginstoday profile image
lifebeginstoday

hiya, i contacted Arthritis Society to see if there was a group locally but i think it would b for osteo. How do groups set up? wondering if this is something NRAS could help us with? Could they b the Umbrella for UK groups? Not pity/self pity groups though! Just pleasant get togethers to socialise and EVEN HAVE FUN!!! Promoting general well being and RA. Jx

helixhelix profile image
helixhelix in reply tolifebeginstoday

NRAS do have a bunch of local groups. Look at their website to see if there's one in your patch. If not, then set one up! Px

lifebeginstoday profile image
lifebeginstoday in reply tohelixhelix

Great thanks for that, will check it ou. Figured there must b something for us. J x

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