I have today received the letter from the hospital with a date for my first appointment with the rheumatology department. I am now going to write a list of my symptoms and questions I want to ask, need to start now as I will remember things between now and the appointment on the 31st August, still seems a long way off but at least I've got a date, I have been reading various blogs and I hope that I get the time with the doctor to go through my list and be able to answer my questions and not in and out within 10 minutes. My OH is going to go with me so that he is going to hear what the doctor has to say and hopefully remind me of the things I want to ask and not leave feeling that nothing has been explain. My GP has been great but again her hands are tied until I have seen the consultant.
I just hope this appointment goes okay and can get the answers I am looking for without any shocks thrown in.
Last week I was not able to take my meds for 24 hours and I realise now how bad I have become in just a short time the meds keep the pain just bearable but being off them it was a nightmare, won't be doing that in a hurry again no matter how I feel.
I have applied for a blue badge but was turned down as yet don't meet the criteria,( by the explanation I must be wheelchair bound or on high allowance of dla ). I am just in the process of applying for dla but guess that will be a waste of time, at present get ESA but that is due to run out sometime in November, (I was turned down after assessment, but appealed and sent in plenty of evidence to which it was reinstated funny ah!!).
Well I am happy now that got a date and hopefully will get some assistance now with this condition but not going to get too excited just yet in case the hospital isn't what is expected, fingers crossed though well I would but they might stay in that position, better not just to be on the safe side.
Hope everyone is feeling ok cyber hugs to everyone.