Greetings to all
I'm new to this site, but it seems to be full of lovely people that genuinely wish to listen/help others, so I thought I would post today....
I'm 40, have been diagnosed for nearly 5 yrs now (since the birth of No 2), currently on mxt, with co-codamol, amitryptilyne at nights. Have had 2 x huge steroid injections since Nov, the last one did nothing to help so the Drs have tried me on sulfasalzine - well after 2 weeks, my face was up in a rash and I was having the most incredible mood swings / emotional moments - one phone call to the hospital later, and I was told to stop it and start again in 10 days! Dreading Friday - will tell hubby and kids to hide!!!
I know that I'm not as bad as many people - my mum has had RA for 20+ yrs, so I know what it can do to you - physically, emotionally, mentally. My life has changed though - I do what I can, when I can, constantly juggling day to day life with painkillers and trying to learn when I have done too much, telling myself to STOP!! But i have days when I feel down / extra tired - I have 2 kids (8 and 5), and its tricky to explain to them.
I hate having to explain to people what this disease is, that it doesn't go away when the sun shines, that 5 mins rest makes you all better. I am very concerned about the genetic factor - my mum has it, I have it - can I do anything for my kids?? If anyone has any input / help I would love to hear!
I hope everyone is having a pain free day and thank you for reading