I don’t often post but need some advice. I have had RA for 11 years and fibromyalgia for 8 years. Recently I am struggling with muscle pain which I know can be a fibro symptom, I keep myself moving but at times I just want to lay down and cry . My sleep already not good is being severely impacted and my mood is very low does anyone have any tips on how to mange this new pain outside of extra pain relief? Also I have just got a mobility scooter but so far have been to embarrassed to use it as I’m only 55 I just feel so sad, angry and alone right now. Sorry if this post is a bit ramble
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my fibro muscle pain and stiffness has ramped up these last few weeks. I’m blaming the humid and erratic weather. I’m hoping it will settle down when the weather does . I’m also finding exercise is making it worse so I’m having lots of Epsom salt baths and basically doing Jack 💩.
We have to find our own way as fibro is a Jack of all trades and master of non generic help
Hi, not sure this will help but I get "cramp burn" in my muscles with zero effort and find Blessed edible CBT drops rubbed on to any super painful area help me, a lot. It is expensive but I literally use the tiniest drop or two and it gives me some relief (tried it ony my 90 yr old aunt who has a bolted broken femur and walks with a stick, she went to the kitchen, and forgot her stick!). Then it's heat bags, gentle stretches, epsom-salt baths, sipping litres of lemon & cucumber non-tap water (I have phox jug), rest & sleep. Remembering to avoid sugar and fried foods (which are a major trigger for me, an RA-ridden, Coeliac-4life who sleeps on a grounding sheet. As for the m-scooter, I consider one daily but not sure I could spare the energy to "lug" it to the car etc. but when I do, I hope to "rock" the look and will try short, local journeys first then build on that (I live alone and have no support near by). You can do this, and you must do it for YOU! nobody else, because you need this, it can help you. Who cares what any losers think, you are a warrior, Boudica on her chariot! Go for it Queen 🥰
I’ve been using a wheelchair on and off for years. I have a manual but RA means I can only use it when hubby is with me. I have hired an electric before and recently bought a folding electric. I use it when I need to including in and around London because I would rather do than not do. Give it a go in your local area. What have you got to use. People are without excepting kind and helpful. One joy of the chair is it is pushable so if I want to get out and toddle for a bit I can. It’s also a comfy seat. I am 65. Slim, and do not look like I need any help. Ha!
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