I don’t often post but need some advice. I have had RA for 11 years and fibromyalgia for 8 years. Recently I am struggling with muscle pain which I know can be a fibro symptom, I keep myself moving but at times I just want to lay down and cry . My sleep already not good is being severely impacted and my mood is very low does anyone have any tips on how to mange this new pain outside of extra pain relief? Also I have just got a mobility scooter but so far have been to embarrassed to use it as I’m only 55 I just feel so sad, angry and alone right now. Sorry if this post is a bit ramble
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my fibro muscle pain and stiffness has ramped up these last few weeks. I’m blaming the humid and erratic weather. I’m hoping it will settle down when the weather does . I’m also finding exercise is making it worse so I’m having lots of Epsom salt baths and basically doing Jack 💩.
We have to find our own way as fibro is a Jack of all trades and master of non generic help
Hi, not sure this will help but I get "cramp burn" in my muscles with zero effort and find Blessed edible CBT drops rubbed on to any super painful area help me, a lot. It is expensive but I literally use the tiniest drop or two and it gives me some relief (tried it ony my 90 yr old aunt who has a bolted broken femur and walks with a stick, she went to the kitchen, and forgot her stick!). Then it's heat bags, gentle stretches, epsom-salt baths, sipping litres of lemon & cucumber non-tap water (I have phox jug), rest & sleep. Remembering to avoid sugar and fried foods (which are a major trigger for me, an RA-ridden, Coeliac-4life who sleeps on a grounding sheet. As for the m-scooter, I consider one daily but not sure I could spare the energy to "lug" it to the car etc. but when I do, I hope to "rock" the look and will try short, local journeys first then build on that (I live alone and have no support near by). You can do this, and you must do it for YOU! nobody else, because you need this, it can help you. Who cares what any losers think, you are a warrior, Boudica on her chariot! Go for it Queen 🥰
I’ve been using a wheelchair on and off for years. I have a manual but RA means I can only use it when hubby is with me. I have hired an electric before and recently bought a folding electric. I use it when I need to including in and around London because I would rather do than not do. Give it a go in your local area. What have you got to lose? People are without exception kind and helpful. One joy of the chair is it is pushable so if I want to get out and toddle for a bit I can. It’s also a comfy seat. I am 65. Slim, and do not look like I need any help. Ha!
I got my mobility scooter when I was 49 and my goodness it was a blessing. My husband wasn’t sure I should have one as I get that you feel conscious of what other people think. But to be honest I was in need of it as the alternative was I couldn’t go out. Seize the day don’t give a hoot what other people think and be a part of the world again especially as you’re struggling at the moment. Even if you just scoot around the block being outside will I’m sure lighten your mood if nothing else. As far as the muscle pain is concerned could it be they’re hurting more because your RA isn’t controlled sufficiently? Maybe a word with GP at the least or your consultant preferably would be in order they may be able to help but can’t if they don’t know. I hope you feel better soon there’s nothing worse than constant unending pain, I certainly know all about that and I’m sure everyone else can relate to it too.
I hope you manage to get some relief from your pain there isn’t anything worse. Please try and get yourself over the use of your scooter I’ve found in the grand scheme of things no one really cares and if anything people who know you will perhaps be more likely step in to help you if they can. Don’t hide yourself away it certainly doesn’t help to feel alone and a friendly face and a chat with someone who sees you out and about will lighten your mood your mental health is easily as important as your physical.
Bless you, I know exactly what you mean about being too young to use mobility scooters. I have felt the same over the years and delayed using a walking stick, then my walker and eventually my scooter. I’m 58 now, still what you could consider too young to be using them but that only applies if you’re in good health and don’t need them. Get yourself out and about, do it for you and it will help your mental health too. Having fibromyalgia and RA is a minefield of constant pain, discomfort and the inability to know which gift is giving that day. Add Osteoarthritis into the mix and, well, you get my drift 😣 Hang on in there, you are doing what you are capable of doing day to day but be patient and gentle to yourself x
It’s good that we have the opportunity to share our highs and lows and far better than bottling it all up. Perhaps a local fibromyalgia group would also be helpful to you. My local one meets regularly and I’m sure it’s the same across the country 😊
Awww so know the feeling of wanting to lie down and cry, in fact I have. Usually in my case so far have RA and OA not fibro my pain accompanies a flare, which requires me calling the RA advice line. The solution in my case is a steroid injection intra muscular when symptoms throughout my body.
Like others I use, ice packs when hot , heat pads when cold. I also have body massage which helps me. When I'm reasonable I keep active when not I listen to my body and treat it gently and kindly.
I am also 55 and struggling with chronic pain at night due to RA ,impacting my already poor sleep. I was on a biologic drug called Hyrimonez which I injected fortnightly and it was fantastic but my new rheumatologist retired and a new,young ,inexperienced one took over and insisted I came off as ‘my bloods were stable’ . Hardly surprising seeing as methotrexate and the biologic made them so. After coming off I was fine for months and now it’s relapsed massively and I’m crying with night pain. Today I’ve been given 1600 strength co-codamol for night ones,whilst not ideal,will hopefully offer some relief while I attempt to get back on my biologic.
Please talk to your dr/rheumotologist ,about biologics (if you are already on methotrexate) ,don’t suffer in silence .
Amazon sell a brand of ankle,knee and wrist supports by Dr Arthritis,copper lined and they are helping me too,especially the wrist /hand ones as they also have splints(I work on a laptop all day)
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Muscle pain ?
shoulder and arm pain
Muscle pain
PAIN
Ohh the pain today 
