R/A and fibromyalgia

[Fortune7]

hi all

I’ve not posted for a while but for the last month or so I’ve been sweating excessively on my head and neck an have a tingling sensation in my feet to my knees and in my hands I am also very thirsty All the time I also feel very weak and tired I’m currently on leflunomide 20mg naproxen 500mg and filgotinib 200mg for my R/A which is the last mixture of drugs I’m trying as nothing seems to work for me. I’m also on Amitriptyline 50mg a day to treat fibromyalgia

I’ve seem Dr last week an he’s perscribed antibiotics and steroid tablets but this has made no difference. Just wondered if anyone else had experienced the same problems.

[Deeb1764]

I had that and was Vit D deficient Re head sweats so might be worth asking to be tested.

Have you been diabetes checked as well recently?

I get tingling sweats and horrendous fatigue with RA and fibromyalgia reynauds. There always seems to be a list. Keep track of what is going on and when and see if you can talk it out with GP or RA team

[Fortune7 in reply to Deeb1764]

Thanks for that suggestion I’m already on bituminous D as I’ve used steroid tablets to control R/A for long periods but I’ll definitely ask about diabetic check thanks for suggestion

[cathie in reply to Fortune7]

Steroids can make blood sugar rise x

[Hisue in reply to Deeb1764]

Any suggestions on helping reduce the RA fatigue, other than exercise? Thanks.

[tangolil]

Hello Fortune7 - have you had blood tests recently? Excessive thirst and extreme fatigue might be the signs of hyponatremia - please get your sodium levels checked as soon as possible. I wish you well.

[Fortune7 in reply to tangolil]

Having blood done every two weeks at the moment

[tangolil in reply to Fortune7]

That's excellent Fortune7 and I hope the solution to your distressing symptoms is soon found. RA is the disease that keeps on giving!

[CJ46]

Hi there I feel for you as I had the horrible tingling in my feet up to my knees and hands up to elbows after I’d been on lefludomide for 3 months. Coming off it caused all the tingling and associated symptoms to cease within 4 days so that was a relief but also a shame as the lefludomide had been working well for my RA unlike methotrexate. I was then put on sulphasalazine and whenever the dose was increased past two tablets a day the same tingling and stinging happened until the dose was lowered. I don’t know if this helps but if you are the same at least you know it would ease quickly. Being checked out for diabetes as well as investigating a lower dosage sounds like a good idea too though. Good luck, I hope you’re symptoms ease soon, this disease is frustrating isn’t it 😢x

[Fortune7 in reply to CJ46]

Thanks I’ll get hold of R/A team as they don’t book regular appointments where I live anymore help line only. I’ve already been on Sulphsalazine an had to stop taking due to side effects. Medication I’m on now is more or less last chance as they’ve tried everything else nothing works for me.

[Deeb1764 in reply to Fortune7]

I was like that are you able to take biologics I am on Baritcitnib only medication I could take without horrendous side effects so far!

[Painter49]

Hi there - I have FM and also have the sweats something terrible much of the time. I am post-menopause so it's not that! Thank God!! Anyway, the fatigue is a daily struggle. My doc (in the US) prescribed methylphenidate which I take once a day, several days a week although the prescription is for twice a day every day. I only take it when I need to focus on something. The tingling, burning, pain in my feet is also a daily occurrence. Seems to hit mostly at night when I am trying to sleep, compounding the fatigue. I started taking GABA, a supplement, a few nights ago and that is helping me sleep through the night. Good luck and take good care.

[Brychni]

I sometimes get this when I have a wave of pain (don't have fibro but inflammatory arthritis) and some of my pain makes me feel sick. It's been happening a lot lately. Not sure what it is. Thought it might be hot flushes as I'm 51 but I think I had 2 of those a couple of years ago and it was very different.