Jelly legs……..

[Amnesiac3637]

Hi All. Had to stop Filgotinib three weeks ago as have been felled by bronchitis. Don’t normally -and luckily - suffer any chest infections or colds but this has been really vicious. Am getting over it but have legs like jelly and a head like a sponge if I attempt to do anything very much. Tried going for a walk a couple of days ago and it absolutely floored me.

Has anyone else had jelly legs - feel as if they’re not going to hold you up - after an infection ? How long before that starts to go and will I ever get right again she wails……..My RD is unstable due to the on/off saga of Filgotinib causing low lymphocytes so I guess it’s all combining to wreck my bod. Interested and keen to know other experiences of post infection blues. Thanks loads in advance, I know I’ll get sensible advice. X

[GinnyE]

I had viral meningitis many years ago and was very wobbly during recovery. I know glandular fever can make you weak for quite a while too. Even good old flu had me shaky afterward. Maybe your GP could help? In the olden days you'd be given a good old tonic!

[Pastels in reply to GinnyE]

Sorry to hear you have been so ill, I had a horrible chest infection about six months ago and it took me a while to get over it. I restarted my Filgotinib about three weeks after the infection . My white cells and neutrophils dipped slightly during the first 9months of taking Filgotinib but seems to have sorted and all fine now. I have to say that most of my friends who don’t take medication have rotten coughs and colds too, if anything I have less infections …..

[Amnesiac3637 in reply to Pastels]

Thanks to both you and GinnyE. As I have had so few chest infections it’s clobbered me and made me feel really weak and also low in mood. I know it’ll go eventually but I’m so impatient to get back to as normal as you can be with RD I’m frustrated that I still feel so exhausted. Hey ho, there’s lots worse to be had. Stay well.

[oldtimer2]

It's common to feel very weak and wobbly. Take things slowly and build up your activities gradually. Just walking around the house every hour can help!

[Amnesiac3637 in reply to oldtimer2]

Thanks, will gladly take your advice!