Greater Trochanteric Bursitis?: I’ve not long got over... - NRAS

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Greater Trochanteric Bursitis?

barbieg profile image
22 Replies

I’ve not long got over Achilles Tendonitis and have now been diagnosed by a Physiotherapist with the title above. I’m in shock because my pain is in the top of the same leg that I had the Achilles problem. It’s very painful to walk again but after reading other peoples symptoms when I put it in the search bar the only thing that seems the same is pain when walking/weight bearing. Most people seem to have pain laying down , I don’t, even though that hip is tender to the touch. I’ve always thought that was due to having Fibromyalgia. I’m very confused and am left wondering if this and the Achilles problem are due to my RA. I was given exercises to do , I’m already doing exercises for my back as my L5 is fused to my Sacrum and severe degenerative something on L1-L2.

Have other people been diagnosed with Greater Trochanteric Bursitis and not had pain in the hip? Thank you.

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barbieg profile image
barbieg
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22 Replies
Mmrr profile image
Mmrr

Im not sure if my story will help you, but it is an example of diagnosing bursitis without evidence. My rheumatologist diagnosed me with greater trochanteric bursitis around 2 years ago, without investigations. I was not happy with the diagnosis at the time.

Subsequently the hip pain progressed along with sciatica, ultimately I had a microdiscectomy and along with the sciatica the hip pain resolved. The hip painbeing caused myback problems.

I now have the most awful sciatica return along with the hip pain, both are much worse this time.

My neurosurgeon does not believe I have a bursitis.

barbieg profile image
barbieg in reply to Mmrr

Thank you. First of all I’m so sorry you are in pain again after what you went through. I came out of my appointment with the physio with more questions than when I went in. I couldn’t understand what he said, not just because he was foreign , he spoke so softly and so fast I had to keep asking him to repeat everything. Hence I only found out what he said when I looked on my NHS app and there it was. I’ve always put down the tender spot at the back of my hip to either my Fibro or my Sacriliac which I’ve had problems with since my early 30’s and I’m 80 this year. That’s why I’m questioning his diagnosis. I have had Sciatic once, you really have my sympathy as it’s excruciating. It had me in tears .

Mmrr profile image
Mmrr in reply to barbieg

I believe I have sacroiliac issues but my rheumatologist says no.

J1707- profile image
J1707-

Ditto. I had Achilles tendinitis undiagnosed for 5 years got that sorted and have GTB on both hips now. I too thought it was fibro but apparently not . It hurts when I walk/ sit or lie on either side. I’m told this is Axial spondyolarthritis as it affects the tendons / ligaments especially in feet / hips / back and neck.

barbieg profile image
barbieg in reply to J1707-

thank you for your reply. Mine really hurts when I walk but the pain is in my thigh. Why I’m not too sure about my diagnosis is I have no pain laying down at all. I can lay on that side with no problems. I have no pain until I’m walking.

J1707- profile image
J1707-

yep me too thigh sore and stiff it effects my stride

barbieg profile image
barbieg in reply to J1707-

Does the pain go from the top of leg (thigh) to your knee?

J1707- profile image
J1707-

yes

Bails67 profile image
Bails67

yes, I have and my pain in top of leg and feels like it’s in my lower back Tender to touch and throbs. Had problems for about 2 years. The physio has been a huge relief and even educating me into standing correctly not crossing my legs has made a difference.I can walk and although it feels a little stiff and mild pain,once I get going it’s fine.I have had X-ray but it only showed mild OA. I was seen by a orthopaedic physio.

barbieg profile image
barbieg

The same as me as regards the pain. Unfortunately, where I live you can self refer yourself to the group physio but all they do is diagnose and give you exercises to do and your on your way. I’m already doing a load of exercises for my back. Thank you for your reply.

Runrig01 profile image
Runrig01

I have ankylosing spondylitis, and Achilles tendonitis and bursitis are common issues. You mention fused vertebrae which is another issue with AS as well as sacroiliac issues. I do wonder if you perhaps have AS. Treatment is much the same with biologics and dmards. Whenever I’ve had the greater trochanter bursitis, I’ve struggled to sleep on the affected side. I would get an intense burning in the affected leg, to the point I’d have to stop. Many a time I’d be reduced to tears, having started walking to meet friends or family, which they could not understand the level of pain I was getting. It can be truly horrendous.

KASHMIRI1 profile image
KASHMIRI1

I have this diagnosis and its extremely painfully particularly after l have been up and around for thirty minutes or so. The pain is horrible and is in lower back left side. It radiates down my leg and gets into my shin. My walking is badly effected. I have had no imaging done just physio which sometimes sets it if and also the right side occasionally. A friend is having a steroid injection done under a ct scan. She was so fed up that she went privately and had a MRI and two consultant appointments.

barbieg profile image
barbieg

Thank you Maureen. I have started to wonder if I have AS lately. It does seem to fit. You are so right about the pain. I was used to spending Saturday mornings out with my friend at our nearest town, just window shopping and then stopping for a coffee but that has had to stop. I ended up in tears the last time I tried to do it, the pain was so bad. I do seem to be different to everyone else though as I don’t get any pain laying down or sitting.

RosieA profile image
RosieA

I have UCTD with inflammatory arthritis and have suffered for several years with plantar fasciitis, which has been very painful. I then got Greater Trochanteric Bursitis, which both the physio, rheumatologist and myself thought had probably been triggered by my altered gait (cos of the plantar problems in the corresponding foot). The pain comes and goes to be honest. I can keep it at bay by restricting how much I rotate the hip.

I had steroid injections in both - fab. Sadly, plantar f returned (triggered by inflammation post vaccine) and low and behold so did the bursitis a few months later. At it's worst it will keep me awake and I will be attached to a hot water bottle all day, going upstairs, taking long steps will trigger discomfort. (I stupidly did a ballet class, lots of rotation, lots of pain.)

At it's best I wouldn't know there was a problem. I can only achieve the latter by altering my activities though. Certainly, prodding along outside of the hip area will trigger quite an ouch moment. So, in essence although I have it, I don't always have pain. I can go weeks with a 'silent' hip and think problem solved and then do something daft....tricky I know. Hope that helps a little.

barbieg profile image
barbieg in reply to RosieA

Thank you, yes it helps. Can I ask what UCTD is.

RosieA profile image
RosieA

Sorry, yes, of course. It's Undifferentiated Connective Tissue Disease. An autoimmune disease. Initially presented as inflammatory arthritis but over the course of a year became Lupus like, so Malar Rash, photosensitive, mouth and nose sores, inflammatory arthritis, costochondritis (now chronic and the bane of my life), fatigue, plantar f, dry eyes. The arthritis is mainly in my fingers and comes and goes alongside flares. I am fairly well controlled with Hydroxychloroquine but have needed several does (often months long) of steroids to control post vaccine flares. What joy!! x

barbieg profile image
barbieg

Gosh, that’s a lot to cope with. I’m so sorry. I thought I had enough with RA, OA, Osteoporosis and Fibromyalgia. We are women, we cope!

Otto11 profile image
Otto11

Yes I ve had steroid injections into my right hip several times. You can have up to 3 a year. I thought mine was originally back problems which I have causing sciatica & the hip pain. I had been walking badly for 5 years after a torn ankle tendon so guessed that had started it. We dissected it & realised they were separate issues. A Rheumy dr has done the last few injections & they have worked really well lasting over a year. The limping has stopped & I can finally lie in my right side again. If they offer you an injection I would definitely try it x

barbieg profile image
barbieg in reply to Otto11

Is the injection painful.

Otto11 profile image
Otto11

Honestly. Yes but only briefly. They put a bit of local anaesthetic in too. So a minute or two max. Then rest up for 24 hours for best results to keep it in that area. They have helped me tremendously. I have to say though years ago the clinic nurses used to do them while I was standing up. Those ones didn’t last long at all maybe a few weeks. But more recently mine have been done in a day unit on a bed with the dr making sure he gets exactly in the right place. They last about 9 months at least. Then because your walking becomes more normal rather than limping it should ease back pain too. X

barbieg profile image
barbieg in reply to Otto11

thank you.

RosieA profile image
RosieA

I agree with Otto11, steroid injection in hip was a game changer whilst it lasted. Mine honestly wasn't painful, but you know what they say.. no brain... no pain. Crucially, as pointed out it gets your gait back to as normal as possible. I think Otto, has nudged me to think about getting another one. It's about 18 months since I last had one. x

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