SEASONS GREETINGS TO YOU ALL: Hi Everyone, I have just... - NRAS

NRAS

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SEASONS GREETINGS TO YOU ALL

ageddancer profile image
9 Replies

Hi Everyone,

I have just returned to NRAS (they helped me 15 years ago when I was first diagnosed and living abroad). I have recently been diagnosed with bronchiectasis and 6 weeks later still have not received any further information, advice or support. The phone call to NRAS was like getting a comfort blanket thrown around me and helped me considerably.

May I take this opportunity to wish you all a Safe and Happy Christmas and a healthy New Year.

Gentle Hugs to you all.

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ageddancer profile image
ageddancer
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9 Replies
nomoreheels profile image
nomoreheels

I'm sorry you've been diagnosed with bronchiectasis, not the best start. pleased the helpline were so helpful though.

A happy Christmas to you too. Can I ask, what was your previous username?

ageddancer profile image
ageddancer in reply to nomoreheels

I cannot remember - paperwork had to be sorted before I returned to the UK and I guess it got lost then. I did manage to get to two of the NRAS events, one in Norwich and the other was up in the midlands somewhere. (these were about 4 years ago I think). I have heard nothing since diagnosed about 6 weeks ago (only by receiving an internal copy letter from Rheumatology to a Respiratory Consultant asking for advice) so have had no support and I was scared. I then had to go to give a blood test at a MacMillan Unit and caught Covid as a result so when I spoke to Rosie at NRAS her help was something really supportive and special. I hope you have a good Christmas. Thank you for your reply

springcross profile image
springcross

I wish you a safe and happy Christmas and a healthy New Year also ageddancer.

ageddancer profile image
ageddancer in reply to springcross

Thank you. Keep safe, keep smiling and be Happy.

sylvi profile image
sylvi

Merry Christmas to you as well. xxxx

helenlw7 profile image
helenlw7

I hope you have a happy Christmas. I have RA, diagnosed in 2004, and bronchiecstasis, diagnosed in 2012. If you go on the British Lung Foundation page, there are people there who have bronchiecstasis.

ageddancer profile image
ageddancer in reply to helenlw7

Good Morning and a Happy Christmas - all the replies I have replied make you realise you are not alone and the support is so heartwarming. I will check the other site you mentioned.

Have a good Christmas and know how appreciated you are. Hugs S

Mmrr profile image
Mmrr

NRAS , a comfort blanket what a great way to describe it. Have the best Christmas that you are able to have.

ageddancer profile image
ageddancer in reply to Mmrr

Suddenly I have found friends, support and welcome. Thank you ,

keep smiling and enjoy what you have. Big Hugs S

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