Rituxan and side effects

[Shresworld]

Ok its been 1 week today since my first Rituxan infusion and 2 days ago I started get a pain in my left side of my back now stomach pain. I have read that those are some of the side effects just wondering how many have experienced side effects and for how long?

[LynneB-NRAS]

HelloIt would be best to contact your healthcare professional to check the side effects you are having. If you can't get through then perhaps call 111 to confirm. For more information you can always call our Information and Support Team at NRAS on 0800 298 7650 .

Lynne

[Shresworld in reply to LynneB-NRAS]

Thank you what is 111 ?

[LynneB-NRAS in reply to Shresworld]

HelloIf you dial 111 it puts you through to an NHS telephone service. It is the number you can call when you need medical advice or treatment quickly and cannot wait for an appointment to see your doctor. (Emergencies are 999 for life threatening situations)

[AgedCrone in reply to LynneB-NRAS]

Shresworld is in the USA……it’s a different world over there!

[LynneB-NRAS in reply to AgedCrone]

Sorry - I wasn't aware. Thanks for helping 😀

[Lolabridge]

I’ve never had any side effects from a Rituximab infusion, other than wakefulness and a slight headache for a day or two afterwards and that is probably caused by the methylpredisnolone given before it.

I’m sorry you’re experiencing some pain so do contact your Rheumy team if your symptoms persist.

[Shresworld in reply to Lolabridge]

I'm so happy you didn't I didn't had that steroid side effects what a wild ride that is 😂 i do have a call in thank you.

[trunchalobesity]

Where are you? Uk? Speak to your rheumatologist team urgently about any first time Rituximab or similar drugs.

[Shresworld in reply to trunchalobesity]

No I'm in Arizona in the USA but thank you all I'm feeling better just aches and pains happy holidays 😊

[AgedCrone]

I would guess what you are experiencing is not a side effect of Rtx….possibly just a winter tummy upset? I am presuming as you were so worried about starting Rtx you are over thinking it, & every little niggle is going to be thought to be a side effect?

The only slight side effect I have with Rtx is that I feel a bit more tired about 48 hrs after an infusion…but nothing worse…it’s a win win for me.

Try to forget Rtx & get on with your Christmas plans 🍸🎄🍾…unless you get a lot worse ….when you should of course give your doctor a call…give it a chance…..at least 8/12 weeks & look forward to feeling much better.

The people who do have nasty side effects on this drug, nearly all seem to have other underlying health problems that are reacting to it….do hope you feel better soon.

[Shresworld in reply to AgedCrone]

Thank you but definitely a reaction of some kind but better this morning 😊

[3LittleBirds2]

Hi Bella

I've had this and it does settle in a day or two.

Always best to check with the professionals though,.

Best wishes 🙂