Babyboy12

[Babyboy12]

Hello I would like to know if any one suffer from spondylosis and I been told I have got this last week on my neck and lower back. Plus I suffer from bronchiectasis and other health problems. Could any one who as got this let me know please thanks. As I am in pain and car't sleep thank you

[Sarahg62]

Hi. I am also 59. Was diagnosed with RA 41 years ago, and after many years of complaining of back and neck problems, ( 3 fused discs in neck and fusion in the SI Joints) I have now been told I have inflammatory spondylarthritis. Sleeping has been a nightmare for years as also have bursitis in both hips. I bought a bed topper with a 2 inch thickness earlier this year, which has helped enormously. I also use an orthopaedic pillow.My Rheumy actually apologised to me for the missed diagnosis!

[Babyboy12 in reply to Sarahg62]

Thank you for your message sorry that you are suffering also. I know how you feel

[Sarahg62 in reply to Babyboy12]

Fun fun fun (not) 🙄

[Babyboy12 in reply to Sarahg62]

Hello sarahg62 I know how you feel we all have our ups and down but I take each day as it comes and I do not like planning anything anymore

[Sarahg62 in reply to Babyboy12]

The only way. Went out for a meal Saturday night - first time in a while. Totally exhausted yesterday - frustrating isn’t it ?

[Babyboy12 in reply to Sarahg62]

Aww I do feel for you. I know have to go up and down the stairs and I am out of breath as I suffer from bronchiectasis also one thing after another. I am always tried its like I do not get any sleep. I know you was exhausted but I hope you had a lovely meal Saturday night we still deserve to go out.

[Sarahg62 in reply to Babyboy12]

We do, don’t we. Had a lovely meal, first time out in a couple of months, but if you don’t live a life, what else is there. Take care

[TraceyDevon]

Hi. I had this diagnosed about a year ago. I’ve recently started on imraldi which , so far, is really making a difference with the pain

[Babyboy12 in reply to TraceyDevon]

Hello good morning Tracey that's good I am glad. Is imraaldi a pain killer thanks I will speak to my Dr and see what she says thank you

[oldtimer in reply to Babyboy12]

Adalimumab is the generic name for Imraldi - it's a biological treatment for Rheumatoid or Psoriatic Arthritis. Have you been diagnosed with either of these?

[Babyboy12 in reply to oldtimer]

Good morning oldtimer I have got wear and tear in my knees and hips and I suffered with my back since I was 16 as I am getting older the pain is getting worse I went to my doctor last week and he said I have spondy-losis and he said not much you can do part from taken pain killers and gave me two sheets of exercise to do. If the pain is the same next week I will go back. I had scan and that showed up wear and tear in my knees and hips. Thank you I will look in to this thanks

[Lupusrelative in reply to Babyboy12]

Me too. Started PT but was skeptical. Been at it for six weeks now and it’s really helping. Having lidocaine injections in lower back next week to see if I’m a candidate for ablation in lower back, argh! Also a memory foam topper on your mattress will help if it’s at least 3” thick.

[Babyboy12 in reply to Lupusrelative]

Hello lupusereliative thank you for your message can you tell me more about the PT please I will go back to my doctor and ask him if they can give me injection also as pain killers do not help much and I suffer from stomach problems now with all the medication I am on. I have got a good memory foam topper also help a bit.

[Lupusrelative in reply to Babyboy12]

PT is very gentle to start off with. To strengthen you core muscles. I will try to post a pic of the exercises I am doing . Twice a day but you have to keep them up. It’s a long haul but I’m determined to do them. Also a 15 minute walk every day. It doesn’t have to be a fast walk, just at your own pace.

[TraceyDevon in reply to Babyboy12]

I was on pain killers for 2 years then pushed my GP for a scan and referral to rheumo. It was then that I had ankylosis spondylitis diagnosed. So I’ve just started with the biological therapy imraldi which means I inject it. I’ve now much reduced pain relief and sleeping comfortably is much easier. So pain killers are not the only answer. Maybe you should ask about biologic therapy too 😃 might work for you too

[Babyboy12 in reply to TraceyDevon]

Thank you I will do thanks everyone for your lovely messages means a lot I know how you all feeling and going through. All the best x

[Babyboy12 in reply to TraceyDevon]

Hello Tracey I will look in to this and speak with my doctor. Yes your right pain killers are not the answer and plus now I suffer from stomach problems with taken to many pain killers all my life. Once again thank you for message

[nomoreheels]

Hiya Babyboy12, welcome. I'm afraid to say that your diagnosis of spondylosis is different to TraceyDevon 's of spondylitis & as such the treatment differs. Biologics won't be prescribed, I’m sorry. Both conditions relate to the spine but spondylosis is caused by wear & tear, in the same way Osteoarthritis is, generally an age related condition. It is confusing with the names being so similar. So, I’m afraid your GP's suggestions for treating are correct, pain relief, anti inflammatories (NSAIDs) & exercise. I have cervical & lumbar spondylosis, treated with pregabalin, amitriptyline, plus cocodamol & etoricoxib (both also prescribed for my other condition Rheumatoid Disease (aka Rheumatoid Arthritis). I also have a daily exercise regime personalised by Physiotherapy. I think in some circumstances you may have steroid injections although I never have. It is important to keep movement going I’ve found. Swimming also helps, the buoyancy being kind on the joints.I hope whichever treatment is decided on it works well for you. It can be very painful so I’m empathise with it being untreated.

This link may be helpful reading medicinenet.com/spondylitis... It's an American site so there may be some slight differences in the main I think it defines the two well.

[Babyboy12 in reply to nomoreheels]

Thank you nomoreheels for letting me know. Never realised until you just said. I can't swimm and only have to do a bit of walking and I get out of breath as I also got bronchiectasis. Never ending to pain I do take cocodamols but I do not like taken to many pain killers as now my stomach is suffering from all these years of taken them. I will speak with my Dr and see what they say. I will look up on link thank you for posting it to me.

[nomoreheels in reply to Babyboy12]

Easily done when conditions affect the same area but important to have info for the one you've been diagnosed with. Many here have more than one condition, it's a balancing act sometimes, what's good for one may not be for another.

Are you prescribed a stomach protector with your pain relief, something like omeprazole? It will be necessary if you're prescribed an NSAID too, especially if as I suspect you'll have to take them regularly to keep on top of the inflammation & pain so do ask if you're not prescribed one already. It might also be worth asking if you may use a topical anti inflammatory as an alternative with already suffering, I use diclofenac 2.32% occasionally, Voltarol is a brand name. It's not generally advised to use both an NSAID & topical but your GP will recommend what's best for you I’m sure.

[Babyboy12 in reply to nomoreheels]

Hello nomoreheels I had gastroscopy last wensenday as some food I can't swallow and got the results back why I was there I have got moderate erosive gastritis and had four biopsies taken I am on aspirin to thin my blood as I had 3 min strokes and I am taken Lansoprazole for my stomach and hospital said to take 60mg for 6 weeks until results come back. Even now when I eat my stomach is In pain and I feel sick. I will speak to my doctor to see if he can change my medication. I will ask about the NSAID to see if that's ok plus I am on so many other medications and I want to cut down. Thank you for your advice and messages. Its always good to get advice