Sweating πŸ˜“πŸ˜°: Has anyone been experiencing severe... - NRAS

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Sweating πŸ˜“πŸ˜°

Bagpuss2021 profile image
β€’28 Replies

Has anyone been experiencing severe sweating?

I experiencing this a few years ago but did not have any idea it could be to do with RA. Apart from the obvious things to do to keep cool, does anyone have any advice as I am struggling.

Thanks Guys

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Bagpuss2021 profile image
Bagpuss2021
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28 Replies
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Soundofmusic52 profile image
Soundofmusic52

Hi ya either having a fan wearing cotton clothes I try to live with it it’s horrible been like it now for about 2 yrs my consultant cut my methotrexate down but it made no difference good luck

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toSoundofmusic52

it's the worst side effect ever

Ompie profile image
Ompie

Are you on predisolone (steroids?). If so, one of the side effects is profuse sweating

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toOmpie

not on steroids now but I was for a bit a few weeks ago

sylvi profile image
sylvi

I constantly get the sweats from my shoulders upwards. I have been told it could be my fibro causing the trouble. xxx

Bagpuss2021 profile image
Bagpuss2021β€’ in reply tosylvi

my rheumatology team mentioned fibro to me but heard nothing since. interesting, might have to look into that further. thanks πŸ˜€

β€’ in reply toBagpuss2021

I too get sweats when fibromyalgia plays up. Dry hot heat for RA

Hi BagpussStrange you should mention this. I’ve really struggled with it this year for the first time. I don’t have a solution but I can definitely sympathise. It’s really dreadful.

As Soundofmusicsays

Good luck with finding a solution. Keep posting. I will too.

Afcbsupporter profile image
Afcbsupporter

Hi. Yes from shoulders upwards - i can ring out my hair & it hurts the eyes plus wet neck.. im not on steroids. Its even worse now with a mask! I dont suffer with fibro but have severe RA. I m on tocalizimub.. like you say its embarrasing & seems no one knows why. At the moment im waiting for dermatology @ hospital to phone me who are going to make up some sort of lotion to see if it will help ( GPs not authorised to prescribe). Will be interesting if any one has found out why we get it & if anything helps...

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toAfcbsupporter

interesting to see what happens. if it works it will be a god send. keep me posted as I will deffo ask for the same. Good luck πŸ˜€

Shelley1701 profile image
Shelley1701

I've been sweating lots too for about a month. Never had it before. I was on a 6 week course of steroids back in June so finished those now. At 51 years old my first thought was menopause but women's health nurse at local surgery thinks unlikely. I dunno what it is.

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toShelley1701

Hi,I don't think mine is anything to do with menopause either πŸ˜•

I also sweat a lot. So much so that it drips from the top of my head all down my face and neck. It is very uncomfortable and also embarrassing. At home I often walk about with a small towel around my neck so that I can keep mopping myself up. I was on Mtx but have been off it for over six months now. I am on prednisolone but only on 5mg daily so a very low dose. I mentioned it to a rheumatologist some time ago but she didn't seem to take much notice. I would really like to know what causes it.

Bagpuss2021 profile image
Bagpuss2021β€’ in reply to

Hi,

I think something has to be done about it, it's just not natural. I'll keep gigging to see what causes it and share anything I find out. πŸ˜€

snoopy29 profile image
snoopy29

Thank you for asking this question as I to have been sweating and its so embarrassing, if I do any cleaning etc I feel like I need to go for a 2nd shower 😱 and now have a fan on when drying my hair , thanks I feel so much better knowing I,m not alone πŸ˜€

Bagpuss2021 profile image
Bagpuss2021β€’ in reply tosnoopy29

seems to be a very common side effect, but not a nice one πŸ™

Lovetodanceto profile image
Lovetodanceto

Well hey there Bagpuss2021 I am the same everyday thought that it was the peri-menopause as I'm 49 take care πŸ™‚

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toLovetodanceto

πŸ˜€

weymouth321 profile image
weymouth321

Me too , I drape a cold wet ( but not too wet ) towel round my neck and found can use the ends to mop face as and when

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toweymouth321

sounds a good idea

teresa2711 profile image
teresa2711

So glad to hear lots of you have the sweats. I’m on benepali and mtx. It’s been really horrid, just doing the slightest things and I’m wet

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toteresa2711

Hi,Just out of interest, do you find benepali painful to inject? I found d it really painful and have been switched. Have found that I am reacting to medication in the pen.

teresa2711 profile image
teresa2711β€’ in reply toBagpuss2021

Hi. It does sting a bit. I intend to put it in my thighs alternating each week. If I keep it out of fridge for a couple of hours it’s not too bad 😊

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toteresa2711

I am trying a few weeks of ice on my thigh before I inject, see how it goes.

teresa2711 profile image
teresa2711β€’ in reply toBagpuss2021

I hope it helps. I must admit I’ve had no problems with benepali, no bendy fingers etc. I was on cimzia before, massive needle into tummy, this is so much better 😊

Flor1rence profile image
Flor1rence

I get very hot at times, always got an Evian face spray in my bag and in Savers they do a really good cooling body and face cooling mist called Aqua SensπŸ˜‰its my life saver! πŸ˜‚

Bagpuss2021 profile image
Bagpuss2021β€’ in reply toFlor1rence

πŸ˜€

hatshepsut profile image
hatshepsut

Yes, I sweat really easily. I am long past the menopause, but it does feel similar to hot flushes. Sweat runs down my back, it's awful, and it can happen anytime, not necessarily when I have been doing a lot.I would love to know the reason, nobody ever seems to take it seriously!

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