I know many of you have taken prednisolone long term and have had bad side effects and would like to know how quickly they appeared?
I haven't posted for a while because I am still locked in the seemingly endless cycle of waiting for appointments and pretty crap treatment.
My private rheumatologist was not great, a bit scatty and made inappropriate funny comments and didn't really listen. She does think there is inflammation and advised me to stay on hydroxy but forgot to send the letter to my GP. I had to call her in the end and she claimed they had been sent but she re sent them. she also didn't do any blood tests as she said she would.
During this time I was sent another appointment with NHS consultant which I hadn't requested but I suppose was generated after my call to the patient liaison. It has just been pushed back to first week of August.
In the mean time, I am not taking any DMARDS as I want to be able to start again with rheumatology in August however, I am in agony - another reason I've not been on the forum. Scans at the private hospital did show inflammation and ganglia (synovial cysts) in several joints so it's not my imagination. I was prescribed Prednisolone ages ago and decided not to take it but as Naproxen does very little and been told by migraine specialist no to take it because of rebound headaches I am seriously tempted as I don't know what else to do about the pain which is getting worse and worse.
I have physio whish I practise faithfully every day but it's not doing anything and it hurts. My shoulders, especially my right is on fire and I have limited movement of my whole right arm. Both elbows are bad, right worse and both wrists. Now both groins hurt too, for example in bed lying on my side with legs on top of each other is unbearable. Getting in and out of the car widening legs and them bringing them together makes me shriek with pain.
I'm depressed now. I can't do much any more. Everything exhausts me and for my daughter's sake I want to be able to function. she wants me to take her and her friend to the pictures on Wednesday and I just know that if this pain continues I will struggle.
Does Prednisolone help? Does it work quickly? The box says 20mg per day (4 x 5 mg tablets) do I take all 4 in one go or spread them out?