Sad and confused, it’s always surreal

[RAlife2018]

I just want to share my thoughts. They are a quite bit scrambled but the point is I’m sad and confused. There are times when I feel better and able to carry groceries or pull weeds. Then there are times when I can barely hold my phone or fork. I’m just sad because I feel insane when I’m unwell because it’s so hard to handle the idea that I was nearly mostly fine three weeks ago. I just want to scream and yell and throw a tantrum. I’m just so tired and confused. Why did this have to happen? I get so angry with my body. Thanks for listening y’all.

[sylvi]

You should contact your dr about how your feeling darling. Ra is merciless, Hugs, xxx

[Hidden]

Oh yep do get it . These are my feelings and reactions your not on your own x

[Pippy25]

Always good to let it out and with people who understand and 'get it' on this site. Having RD (RA) can feel like being on a roller coaster...go with the good days and go gently on the not so good. Take care xx

[Deeb1764]

I think many of us or all of us go through this on the bad days. I ranted a lot in the past 2 years from being, I love my work 40-50hrs and loving life to now sofa prone. I decided last week enough was enough and put in some things to try and change my life -its not easy but I am staying focused and trying to do things for me. So weight loss , more movement no matter how little and not beating myself up on the tough days.Just come on here and rant as we all get it. x

[oldtimer]

I have had Rheumatoid Disease for over 30 years and I still feel like this! I hope that it's normal and certainly loads of people with long-term illnesses feel like this. But what you do about it apart from just accepting how strange, furious and disconnected with normality you feel, I have no idea.

[LoneEra]

Have you had any counselling at all? It may be that a professional could help you to work through some of the understandable frustration xx

[stbernhard]

Hi there, I can very well understand how you feel. 12 years ago I couldn't hold a knife or fork for months. It's understandable that you ask why this and why me! Over time, with the help of others, you'll hopefully learn to accept that you have RA and it's not your fault. I learnt very early on that my attitude and my contribution to self management of RA are just as important as the medication I take.

Learn as much as possible about RA. The more you know the better you are equipped to deal with doctors etc. You may know about NRAS, but if not, in my mind it's the best source of information and help. Their help desk people are wonderful. You can request one to one peer chats with trained people who live with RA. There's also an app by Ampersand called "MyArthitis" which is a very useful tool and has courses which are very helpful. I live a full active live and RA is not a great consideration anymore. Please do not give up hope. Life is good. Ps. carry on offloading, screaming and shouting on this forum, there will always be someone who understands.

[RAlife2018 in reply to stbernhard]

Thank you so much, your words give me hope. More so, give me faith in believers there is a way. My grandmother always said, with faith you could do anything. Thank you for the reminder.

[Green230461]

We are all RA warriors on here. Sometimes being able to get out of bed and shower is equal to climbing Everest. Getting a zip up on your trousers makes you shout for joy. Sometimes you even get to lift the kettle and make your own coffee! But don’t despair. RA sufferers are the brightest most adaptable brilliant people I know who come up with different ways to make life accessible again and you will too. Everyone moans sometimes it’s good to hear you are not alone. So read up on RA and join in here. I have learnt a lot from others here and the anonymity allows you to just be your real self. Take care 🌈