So frustrated. My rheumatologist after seeing me once is happy not to see me again.
I received a letter that said as there was no active arthritis in my xrays and MRI and clear bloods, that she is happy to wait until towards the end of this year to see me again. Even though during my last (and 1st appointment) with her she offered me help to get dressed as I was struggling, despite being 24.
So despite the synovial thickening in my toes and fingers, face rash across my cheeks, joint pain, swelling and stiffness, numbness and pins + needles in fingers and toes, dry eyes and eyes, nail problems, hip issues, eye floaters in vision and skin rashes- I just need to get on with it. No explanation as to why I suffer from these things and as to what could be wrong.
She concluded her letter that it would be unlikely that she could offer me any additional treatment- so that means for me that I continue taking paracemtol, codeine and amtripline for the foreseeable future.
I just feel disappointed- I hoped she would give me answers but because nothing straight forward came up in my bloods- it feels like another medical professional who has given up on me.
I am confused by my issues being caused by an infection, as I had no big illness so to speak before this. I just went to bed and became sore with my joints one day and didn't get better. Things started and new symptoms developed over a 6 month period.
Sorry if this is the wrong place to post this- I just feel really disappointed and set aside just to get on with things. Any advice? What do I do now?
I just feel that I have been left to deal with feeling the pain every day. Fed up of having to explain myself to people- who don't understand because they don't experience it.