Hi, this is probably a long shot, has anyone been diagnosed with pulmonary fibrosis and was taking MTX. I’ve been on MTX for 4.5yr to manage peripheral symptoms that go with my ankylosing spondylitis. I have no chest expansion due to fusion as a result of the AS, so have always had a degree of shortness of breath. I’m also asthmatic and my peak flows were getting worse, despite no infection or allergy triggers, so my GP organised a CT thoracic with contrast. She called last Friday to say it came back with Pulmonary Fibrosis. You could have knocked me sideways.
Now today my Rheumy phoned and said to stop MTX immediately as it can cause pulmonary fibrosis, although he agrees the inflammatory arthritis can also cause it. I’m nervous as missing one dose causes my hands, feet, knees and shoulders to flare, and he doesn’t want to offer an alternative till I see him in clinic to discuss options. If anyone has had PF diagnosed did they let you continue. I just feel if it was the MTX I would have had symptoms before 4.5yrs. Feeling pretty low tonight, which is bloke he. Doesn’t help that the official charity quotes a life expectancy of 2-5 years and I’m only 55. 😏. I have an urgent respiratory appointment 5th May and rheumy will try and see me soon after that, so rough few weeks ahead