Hi hope everyone is ok... I’m not happy ..anyone else having issues getting there toc injection second week now no injection.. hard work... I rang 3 weeks ago prescription line and last week on Tuesday this is my day I inject ...no one as got back to me..rang secretary she says it’s been sent a week ago yday.. then i rang Lloyds today who deliver no sign of my prescription showing up for me.. it’s my second week without my toc I’m not happy..feel like ringing pals and complaining.. will I even get them by next weeks ?joints will kick off soon ..last time I went clinic these two band 7 specialists nurses not a soul in clinic just me and them two send me off to clinic g for a blood draw other end of a big hospital hobbling on my knee. After my injection in it.plus trying to drain it. were is there compassion ? and bare in mind this was the height of the pandemic when I had my steroid in my knee ...so off I hobbled it was shut.. I went back to be told come back Monday for bloods . In the midst of a massive pandemic...it would have took one of them two to take my blood a minutes job .. I live half hour drive.. they had a pop at me for been ten minutes late some lunatic reversed into my car and drove off when I was parking I told the them the story they just grunted so miserable ... felt like saying rheumatology have never ever kept one single appointment ever it’s constantly changed ..and now this.. this folks is a bad day.. just makes me mad 😡 sorry for the moaning hope you are all ok.. and had a lovely Easter 🐣
Delivery issue: Hi hope everyone is ok... I’m not... - NRAS
Delivery issue
That is no service at all is it. You have every right to be furious. I would put a complaint in writing go PALS, your Rheumatology consultant (or his secretary) and I'd also email Lloyds - if they haven't received your prescription they can chase from their end. No-one should be left without medication for weeks because Rheumatology and Lloyd's can't get their act together, absolutely pathetic.
Yes I totally agree that’s appalling. Complain as Dobcross has suggested.
Don't want to get them in trouble..these two need to retire so miserable.
Awful. Definitely complain about the meds. The ever moving feast of rheumatology appointments is incredibly frustrating. Years ago, I got a letter 2 weeks before the booked appointment informing me it had been moved to 9 months in the future. I’d already waited about 12 months at that point. It became a standing joke in the family that every appointment I had would actually end up taking place the following calendar year. (And then I left rheumatology altogether)!
So did you move hospital ...its a joke not one appointment is ever kept ever..never known anything like it ..its like its normal. I tell a lie one appointment was kept my very first one.. but the rest all changed..I got 2 last week one for nurse and one for bloods I'd had my bloods done 10 days before so I rang she said ignore them wait for one in June..imagine if o was soft and went i would fume...no doubt I will get a letter saying its changed cant keep up with it all..thinking of changing but by the sounds of its its normal.and the cheek of them pulling me because I was 10 mins late sorry love someone just bumped my car and done a runner . If they insult me one more time keep saying loose weight my knee is no good gp told me its bad need anew one I may just turn around and say because they all grown there dyed hair out with lockdown youb look 20 years older. There my age 56 maybe i may just say oh you look so much older with your hair like that. I think you should dye it back when they say thats abit rude I will say well so are you..about me bit of weight.. im a right nark today.my knee is giving me hell and no meds for the ra .my daughter says you can't say that ma I said oh yeah I can.. they miserable and nedd to retire ..whats wrong with people..
Honestly, after five years of terrible “care” and also going through DMARDs and biologics without any improvement in my RA, I just stopped going to the hospital at all.
I felt so let down I couldn’t do it anymore - it was making me more frustrated and upset. So for the next 10 years, I got painkillers and NSAIDs from my GP and then paid to get my knees aspirated privately as and when required.
Unfortunately I’ve gotten a lot worse recently, so I’m now back in the rheumatology system - but at a different hospital. The new consultant seems decent and I’m just starting leflunomide as it wasn’t used back in the day, so it’s new to me. I’m 39 now, but was diagnosed quite young.
A lot of others on here have been told to lose weight. Like it’s easy when you can’t exercise!! And all the pills cause havoc with your weight too.
Is there another hospital near you that you could transfer to if you felt like it?
We have all put on weight. It is called Lockdown with knees that don’t work! Stand your ground my lovely. We are all RA warriors on this site and support you. 😀
G I had years if steriod weight and retired a while ago..and with my knee i can't get about like I did..summer is here now so lots of salads hopefully get my weight down.
Hope the lef sort you out and you can get stable lo I stay because its a big hospital and they have more funding my hospital is tiny by me so I can imagine the treatment isn't funded as good..and there ratingbisnt great its better at the bigger place..its seems like ra isn't made priority with all these appointment changes..but hope you get sorted out and in remission..x
Complain to PALS. You should not be without your meds, should not be sent all over the hospital for bloods and, if they don't like their jobs, those miserable specimens should leave. What a rotten lousy day you've had. May I prescribe chocolates, PJs and a foot rub?
gnarli there so miserable and definitely need to retire I've never meet such a bunch of miserable nurse in all my life one guy was nice and pleasant but he soon left.. my mate done a 6 months secondments and as a band 7 she was offered a job she refused she said it was like doing a life sentence in solitary confinement would have seen her off if she stayed ..I've had a hot Epson salts bath sat in it for over half hour pj's are on and a drinking chocolate..foot rub would be a treat.. im hoping Lloyd's pharmacy can get it for me I've spoke again to them fingers crossed.. x
It makes you wonder why they went into a caring profession doesn't it?
If they hate it and they clearly do move on..I loved my job I was a auxiliary for years I loved the patients making them feel good. and safe miss my mates..retired 18 months ago .just be nice caring and care about the patients thats your job do not let them hobble all over the hospital with a dodgy knee whilst there is a huge pandemic pathetic.. put a smile on your face. Would never be like that in work.. feel sorry for some of the patents with some people..x
You must have been amazing at work and much missed. People like you, you know, the ones that truly care are very rare
You should not be left without meds. Speak to your GP and get them to chase it too. Also write to pals at hospital. That has worked for me. I know you don’t want to complain but you are unwell and it is their responsibility to help you. As for Lloyds a letter to head office is like a gift from the angels. Speedy and helpful. So don’t give up. Be an avenger and fight back!🐣
Its sorted now I rang Lloyd pharmacy its sorted been rushed as urgent.. Will. Just leave it for now hopefully it shouldn't happen again..
ANGRY
warning!! Long post
Appointment with Rheumatology nurse
