Imraldi VS Mast Cell Activation Disorder

[DesertRose69]

Hello, anyone taking Imraldi experiencing issues with MAST cell activation disorder? I’m have elevated heart rates that have caused me to pass out, like when I have a reaction to perfumes/something that sets it off? It’s been very well controlled for a year and a half, but I injected Imraldi on Friday and my heart rate has been 88-114 at rest, hit flushing, wakes me up through the night and yesterday caused me to collapse whilst seated.

[springcross]

Hi DesertRose. You're in the forum for Rheumatoid Arthritis. If you type The UK Mastocytosis Support Group in the search bar, you should find it or click on the Home button top left and then type it in the search bar that appears in the next screen. Good luck. x

[DesertRose69 in reply to springcross]

Thank you. I was hoping some with RA who have EDS & MCAS could relate. Will try the other as you suggest

[springcross in reply to DesertRose69]

Hi DesertRose. That's absolutely fine, I just thought you maybe had arrived here by accident. You're very welcome here. Hope you find what you're looking for. xx