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New biosimiliar to Humira, Imraldi

Hi everyone, I’ve not posted on here previously, however I have been reading and learning from you all for sometime, thank you for this forum. I’m currently on Humira, I’ve only been on it for three months but I received a letter and documentation this week from the NHS stating that I’ll soon be changed over to the biosimilar, Imraldi. I understand the reasons why, I just wondered if others had also received this and whether you’ve tried it yet and if it’s as effective?

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I'm in the same boat Endless gave 3 Humira left then onto the bisomilar like yourself,hope its as good as the Humira has been wonder drug for me , Merry Christmas and a Happy New Year xxx

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Yes I have three left in the fridge too, then I expect I’ll try this. Hope it’s good, only just beginning to feel the benefits of humira...

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Snap I have four in the fridge so at the end of January I'll be with you and many others xx

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Hi we got our letters a couple of weeks ago start the new ones in January I have been assured by my Rheumy team that it is identical to Humira just made by a different company as the old contract had come to an end,this opened the door for others to tender for the contract

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This ofcourse is not true it is not identical. Made of an other molecule. The good news however seems to be that its efficacy compared with humira has shown to be a bit better. Hope it will work well.

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The last time I saw the rheumatology nurse at the NHS trust I am under she told me they were currently deciding whether to switch to Imraldi or just stay with Humira. The reason they might not switch being all of ‘the hassle involved switching to benepali’.

Apparently it didn’t offer the savings they’d hoped for and was an immense PITA to swap. I haven’t heard yet what they have decided.

🙏🏻

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Interesting. Do you know why they didn’t make savings? Was it low success rate or additional costs in the switch?

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Not sure of the details, I was told they’d ‘done a review’ and the outcome wasn’t that straightforward. I got the impression that the process of switching people was a factor and it just didn’t bring them the savings they’d hoped for.

They hadn’t decided what to do about Humira at that point, don’t know if that’s changed.

🙏🏻

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Definitely something you need clarification on Ade, seems Humira is the singular most expensive med & that the NHS are targeting re the use of it's 4 biosimilars. england.nhs.uk/2018/10/nhs-...

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I assume they will clarify their position when they make a decision. I also have no idea how much autonomy each trust has making these decisions, but the way it was described to me by a nurse specialist was exactly that - they haven’t decided yet.

If and when I hear any more I’ll try to remember to post it.

🙏🏻

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I had my first Imraldi injection last Saturday. No side effects so far and the injection itself was 100% less painful than Benepali. Fingers crossed now that it works as not felt so good on the Benepali . Good luck with your switch over. Xx

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Recently had an appointment with my Biologics nurse and we discussed this.I am on Humira, have been for the last 3 and a half years. It works for me very well,am in drug induced remission.

They are hoping to keep me on Humira. They expect the price of Humira to come down. It is my consultants and my own wish to stay on Humira,and this has been noted.I think I read that they have to take account of your wishes.

My nurse said where there has been changes,which was from Enbrel to the bio-similar,patients have not been doing so well, but new patients straight on to the biosimilar have been doing well.

I was allergic to Enbrel,and for me this is the worry that it could happen with a switch.

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That’s very interesting. I haven’t had a consultation since starting Humira, which was in Ocotober. I expect, although I don’t have an appointment, to see my consultant early 2019. I only received documentation through the post that I will be changed over. The active ingredient is the same as the active ingredient in Humira, so I don’t suppose it will present problems, but I suppose I will find out.

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Have you started Imraldi yet??

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No my new delivery was of Humira, have you?

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I have have had the blooming letter from Hospital Pharmacy about switching to Imraldi from Humira. To be honest a bit annoyed, as it is a blanket letter , stating all patients are being switched from Humira to Imraldi.

So what happened to our personal wishes about staying on same drug!!

I think I will be putting a phone call in to my rheumy helpline on Monday about it.

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Ah that’s a shame. I just saw your post about staying in Humira and thought that explained my own team’s stance - patient’s wishes, reduced costs, hassle switching etc. Maybe they have all been forced to switch?

Might be that, like you say it is a blanket letter - they will try to switch everyone and the one’s that have issues (complain the loudest!) might get switched back at some point. And that is probably the ‘hassle’ that my Rheumatology team were talking about.

I hope it works for you.

🙏🏻

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Yes that sounds like the letter I received but when I put in a new request with HAH they delivered more Humira. I was expecting Iramaldi because of the letter, however I haven’t seen anyone from the hospital since I’ve started on Humira from October last year, so I’d like to think they may wish to speak with me first but I don’t know

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Thanks for that Endless I will not only ring rheumy helpline I will ring HAH as well to check what they are going to deliver.

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