Anyone ever tried or hear about the Gerson therapy? L... - NRAS

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Anyone ever tried or hear about the Gerson therapy? Lots of people are saying it works miracles, but I’d like to hear if anyone here tried i

forislava profile image
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Anyone ever tried or hear about the Gerson therapy? Lots of people are saying it works miracles, but I’d like to hear if anyone here tried it or heard anything about it. I read the book so I’m aware of their theory...

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forislava profile image
forislava
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Ali_H profile image
Ali_H

It’s another diet based ‘miracle’ which involves a potassium rich and sodium poor diet, taking supplements and having coffee or castor oil enemas - I know how I like my coffee and it ain’t that way 😱

Here’s a link - cancerresearchuk.org/about-... to get more info.

Supplements I do take are turmeric, vitD3 and flaxseed oil (I’m allergic to seafood and thus fish oil as most have shellfish traces).

I eat pretty healthily but am not fully vegetarian - transitioning so now eat less meat but the transition may take some time as I can’t get a suitable protein substitute I like, one can only eat so much peanut butter and cheese. And I won’t touch tofu or soy product.... blah!!

My potassium has always been high so I won’t push that up any more so like to keep to the ‘eat the rainbow’ approach to my diet as each different coloured fruit or veg offers different vitamins etc.

I ‘self-massage’ Joints and feet plus surrounding muscles to keep them supple whilst also using a small stand on (or sit) vibration plate for circulation support. I have a mini trampet which I use to flex up and down on with some low jumping which helps to shift lymph fluids around, lubricate knees and ankles whilst helping with balance.

I hope something in there is useful😎

All the best

Ali

AgedCrone profile image
AgedCrone in reply toAli_H

I think the answer is in the first line...”There is no scientific evidence”

OK on this occasion it is referring to cancer...but if you search you will probably find the same applies to,RA.

Fruitandnutcase profile image
Fruitandnutcase in reply toAgedCrone

Ha, ha. My answer came when I reached coffee or castor oil enemas! A step too far for me although everyone to their own.

I’d say take your meds, gentle exercise, eat good quality, well cooked food, avoid junk food, fizzy drinks and sugar plus anything you can’t pronounce that’s on the list of ingredients although there’s probably nothing wrong with a nice bar of chocolate every now and again 😉

AgedCrone profile image
AgedCrone in reply toFruitandnutcase

And I’m going to keep eating my crisps together with my glass of wine. Diagnosed 20+ years ago ...& still going strong so I must be getting something right....along with my RA drugs of course!

Nyreedw profile image
Nyreedw in reply toAgedCrone

Snap. 20 years plus too. No pred or pain relief and working full time. Only issue I have is OA in my hips and need replacement but just use ibruprofen gel for that. Nothing has stopped me and I'm certainly not giving up my glass of wine either lol 😉 x

AgedCrone profile image
AgedCrone in reply toNyreedw

Girl after my own heart!

Kags1068 profile image
Kags1068 in reply toAgedCrone

Life wouldn't be worth living without my walkers roast chicken crisps and cheese quavers!!😁😁

Neonkittie17 profile image
Neonkittie17 in reply toKags1068

Addicted to Twiglets! Well they are full of vitamin B. 😁 I love Quavers too. Light and very cheesy. I have both regularly. Surprised they haven’t diversified and done flavoured Quavers (Cheese and onion, cheese and tomato) or maybe they have??! .. and some may cry sacrilege, but I actually think that would be nice. I do love Quavers though. 😁😋

Kags1068 profile image
Kags1068 in reply toNeonkittie17

I think they made prawn cocktail quavers at one time (don't know if they still do). Bit too exotic for me though! Husband once bought a multipack of prawn cocktail flavour quavers by accident about 15 years ago. Still haven't forgotten it!!😳 I'm afraid I'm very boring, and it's got to be cheesy quavers - eat them every day! 😁😁

in reply toKags1068

🤢🤮

Kags1068 profile image
Kags1068 in reply to

Haha!!😄

Brychni profile image
Brychni in reply toKags1068

Kags: This is probably the best post I have ever read! There's a short story in there somewhere. 😆 Another crisp related fabulous one liner which is now permanently in our family lexicon is 'the line: smoky bacon reject line' from a friend who, as a student, worked in the Smiths Crisps factory, weeding out inferior specimens from the smoky bacon line. Comedy classic.

Kags1068 profile image
Kags1068 in reply toBrychni

Haha - glad you enjoyed my tale of quaver related woe Brychni.😁 The disappointment of prawn cocktail quavers will probably never totally fade. 😉

Wow! Working in a crisp factory, eh? What a dream job - haha!! It'd have to be a Walkers factory for me!

Who knew that some poor crisps didn't make the grade? Hope your friend was allowed to eat them!

nomoreheels profile image
nomoreheels in reply toNeonkittie17

I love Quavers, Twiglets too & always have both in. You may be surprised Julie, I know I was, Quavers have not only been made in Prawn Cocktail flavour but also C&O, S&V, Sweet & Sour, Chinese Beef, Tomato Ketchup & Bacon.

Brychni profile image
Brychni in reply tonomoreheels

🤣 The ultimate crisp is not available in the UK. FunnyFrisch Ungarisch (sweet pepper) from Germany is, I am almost certain sprinkled with some sort of instantly addictive substance. They only come in large bags and if I eat one, I eat the whole lot. I have pad brats friends on Facebook who can 'get them' for people!!

nomoreheels profile image
nomoreheels in reply toBrychni

I know! Used to buy them in a cash & carry in Spain. The nearest I’ve found in flavour are Lay's Campesina.

Neonkittie17 profile image
Neonkittie17 in reply toBrychni

I always love when I’ve gone to Austria and Germany and had their savoury snacks. 😋

Kags1068 profile image
Kags1068 in reply tonomoreheels

Wow - I'm shocked. I thought I was a quaver expert, but apparently not. Perhaps I've just blocked those other flavours out as for me there is only one true quaver - cheese!😄😄

nomoreheels profile image
nomoreheels in reply toKags1068

Agreed. 🧀

Brychni profile image
Brychni in reply toKags1068

😂

medway-lady profile image
medway-lady in reply toNeonkittie17

Really easy to make Twigletts, buy or make or make a block of pastry and layer up marmite and cheese fold repeat , repeat and rest, then top with cheese so really cheese straws with marmite and bake.

Neonkittie17 profile image
Neonkittie17 in reply tomedway-lady

I’ve made straws like this a long time ago, before but nothing beats the genuine crunchy Twiglets, but thanks for reminding me! I’ve a huge container of Marmite! 😍

Eiram50 profile image
Eiram50 in reply toAgedCrone

I’m with you in this one!

medway-lady profile image
medway-lady in reply toFruitandnutcase

Personally I love the cocktail of ingredients in some foods and as I can't eat gluten I do like a bit of fudge, fruit gums, butter, cheese, and chocolate which is of course a vegetable anyway. lol x

AgedCrone profile image
AgedCrone in reply tomedway-lady

It’s strange how taste’s differ isn’t it?

On your list...apart from the cheese...I touch none of the other items....don’t miss what you never had I guess ..when I was a child

none of them were available! 👩‍🦯

medway-lady profile image
medway-lady in reply toAgedCrone

Taste is such a hard thing for me at the moment since starting Etanercept coffee is vile. Like drinking tin cans. It is weird I know antibiotics can make tastes change but I can live without coffee. That includes all forms from pods to latte its all awful but on the plus side my hands both look completely normal and the queasiness has gone. So I've been trying fruit teas and some have been nice some vile. lol

AgedCrone profile image
AgedCrone in reply tomedway-lady

Lemon & ginger tea is very tasty....but I couldn’t live without my builder’s tea for breakfast and my Earl Grey for afternoon tea!

I couldn’t care less if I never had another cup of coffee again. Unless it was Blue Mountain coffee in Jamaica or Kenya coffee in Kenya.

Coffee really does taste completely different in it’s country of origin...but bring it home & the magic is not there.

Neonkittie17 profile image
Neonkittie17 in reply tomedway-lady

Enbrel didn’t do that to me but I only took it five weeks before it failed. Shame. Doxycycline abx make tea taste like a mug full of nails .. all metallic. Doesn’t do it to coffee for me though.

medway-lady profile image
medway-lady

It's Sunday so promoting day. This post could be seen as drawing people in, in a clever way and its another diet that can solve all the bodies ills including Cancer. Some seriously weird claims and " lots of people" well thats a vague term isn't it ? Sounds very like a promotion to me. Following your post yesterday the Radcliffe Hospital approve of this therapy ?????

forislava profile image
forislava in reply tomedway-lady

I promise I’m not promoting anything!!! I’m simply desperate... and I asks exactly because it’s vague, some say it’s great, some say it’s b*****, there are so many contradictions it’s driving me crazy! I want believe, but until I see it with my own eyes I’ll never will. But who knows, someone here might tried it and I wanted to know did it help at all. And I didn’t ask my rheumatologist about this therapy yet, she thinks I’m crazy enough... honestly, not promoting anything, just chatting while my kids are having snack.

in reply toforislava

I know your not promoting your just desperate to find your way . Healthy diet is good your doing that but a diet that will induce the changes you want may not work or if they do will take a long time and on the mean time your struggling and getting down . Try the meds get stable then try the diets and if in remission talk to your Rheumy to slowly decrease meds and see if a pacific diet works for you.

Boxerlady profile image
Boxerlady in reply toforislava

Great advice from J1707 👌

in reply tomedway-lady

A bit harsh ML . I see it as someone struggling with diagnosis and looking for help. We have the advantage of years with RA so know what can work. I had a friend who was convinced diet was the way to fight breast cancer was determined not to poison her body with chemo etc. No matter what anyone said she trawled the web for alternatives. We couldn’t tell her what to do it was her decision. It she was still asking and looking on sites till the day she died.

medway-lady profile image
medway-lady in reply to

We all look at things with different eyes, the OP joined 30 th with angst so I did feel a lot of sympathy now next day about diet and again the clean eating stuff. If anyone wants to try this type of thing then it's up to them but asking about views does strike me as drawing attention to it. The OP talks about having RA for 8 months just why now? so I'm not harsh and her latest reply does indicate that she understands why I'm concerned. We are all grown up and can make up our own minds but when I read about this diet and it appears to be able to cure Cancer then what??? a local lad died believing such nonsense and that he was getting worse to get better. I wish her well but wondering what is dirty food ??? when thousands of families will struggle to feed families now it seems to me to a really silly thing to promote. I collect and worked for a Foodbank and food is food is food. As for clean eating all food is processed even washing a carrot is a process and RA is in the fossil records, I don't think those ancient people shopped and ate dirty food whatever that is. So I'm sorry that you think thats harsh but the implication that people have RA pain and all its associated problemsbecause of diet is dreadful. I'm sorry to about your friend so much money is made off of the desperation of the vulnerable, its immoral and how anyone could ignore the medical wisdom in favour of snake oil and smoking mirrors is really so sad. I do believe being a healthy weight is vital but that doesn't mean avoiding any food group unless its medically advisable as in the case of Gluten.

AgedCrone profile image
AgedCrone in reply tomedway-lady

We & every single consultant rheumatologist we have ever spoken to tells us there is no clinical evidence that diet has any effect on rheumatic disease..

You might feel better if you eat something you like rather than gulp down something you despise because you think it is going to help you ....but the only way is to listen to your doctor& take his advice.

I think that covers it ML don’t you?

helixhelix profile image
helixhelix in reply toAgedCrone

Actually AC the times they are a’ changing...good rheumatologists now stress that diet is super-important as maintaining a healthy body does have a knock-on effect. I entirely agree that no amount of supplements will cure or relieve symptoms. But particularly for those who are starting from a poor base line (high fat, high salt, junk food, no veg etc) it can help. A lot of course is linked to weight, as being overweight can make drugs less effective and tends to make symptoms worse, but even if below BMI 25 it can help.

AgedCrone profile image
AgedCrone in reply tohelixhelix

I think you have misunderstood HH.. Any good Rheumatologist has always advised a good healthy diet, explained height to weight ratio is important,& a balanced healthy diet will help help to tolerate the drugs we take for RA. That since my nursing days in the 1960’s.

When first diagnosed my first question to my rheumatologist was ...is there any special dietary regime I should follow, or any foods I should avoid...he said just eat healthily....& presumed I understood what he meant !

What I was saying was that no clinical evidence exists proving that slavishly following any particular advertised diet has proved beneficial to RA.

I thought it was taken as a given that being overweight, eating junk food, excessive alcohol intake & smoking were understood not to be helpful?

Personally I would not want follow a vegan or gluten free diet.....but if in the early days of diagnosis a rheumatologist had told me either of those diets was proven to take away the pain I would probably have forced myself to try them.

Thankfully..by sticking to a halfway decent diet..swallowing countless DMards & now having Rtx infusions I am living a mostly pain free life.

Brushwork profile image
Brushwork in reply toAgedCrone

Actually my Rheumatologist agrees that diet certainly does help, not to cure RA, but to improve the bodies ability to cope with RA. A very different claim.

The evidence is mounting that lowering the amount of animal proteins consumed and increasing plant based foods, has a very positive impact on health and well-being.

Just an observation, it’s easy to find support for what you choose to believe when it follows ingrained habits.

AgedCrone profile image
AgedCrone in reply toBrushwork

As I explained to HH I am not saying diet doesn’t matter....... of course it does........healthy eating helps everybody whether they have RA or not.I am not advocating any particular diet.....I have no ingrained habits that I am trying to pass on ....I’m sorry that I seem not to have made that clear.

forislava profile image
forislava in reply tomedway-lady

Hi medway-lady:) To answer your question why I'm asking questions now, 8 months after after I was diagnosed. Well, because the firs few I was in denial, total and complete denial that this is happening to me and I refused to accept it. Than things started to get rough because I continued to live how I'm us to and to eat what and when I wanted, I started researching and reading everything I could put my hands on and the more I read the more desperate I became.. Even though I reduced the symptoms dramatically, then the depression hit me, the emotional side that I simply don't know how to control... This is why I am asking these questions 8 months after I have been diagnosed. BTW this is the second forum/community I've ever been a member, first one was mum's net when I was pregnant with my first child, I'm not the sharing type or asking for help type of a person but I'm on my knees know.. and I hate social media, I don't even have a facebook... So no, I am not promoting anything, I am not selling anything. I am in my optimal weight level, I'm the same size I was 20 years ago and I intend to stay that way but not with a special diet that I am trying to sell. I stayed that way with extremely hard work - running, weight lifting, you name it... and eating what I wanted... biggest mistake I ever done I think... I thought whatever I eat I'll "run it out" tomorrow. And it worked for quite some time so I had my fare share of steaks, red wine, Nutella and cheeskaces:) I'm avoiding some food groups because I tried to get back to them only to wake up in agony the next day - obviously they are a trigger for me at least for know... I've already booked my next appointment with my rheumatologist and after that I'll make a decision, once again I really hope I managed to convinced I'm not promoting anything... just looking for answers.

Hessie5 profile image
Hessie5 in reply toforislava

Finding the right diet was frustrating for me as you had some professionals claiming to help your RA ” eat say tomatoes, and another person would say don't eat tomatoes”. the same said for other food groups, all of this stressed me so much! It was causing me even more darn pain.

I decided to build my toolbox, that contains a food diary to help track how I feel after eating. ; I eat well, have the odd treat such as recently a slice of pumpkin pie 🥧 (yum) - I don't eat processed food only because my joints don't like it and I would pay the price the next day. I am on a biologic also.

If any food causes pain, I rule out, i.e. peanuts for some strange reason makes me sleepy, white rice, dairy can cause joint soreness.

I take good branded essential supplements; B, C, D, to name a few. Collagen too! Most importantly, I exercise nothing strenuous 30 minutes some days 15 - this is to help my joints and blood pressure.

In essence, everyone's needs and likes are unique to them.

Hope you find a toolbox that works for you 🤓

medway-lady profile image
medway-lady in reply toforislava

Then why are you asking about this diet, if it works for you then good, but I don't think you've been on it very long and are drawing some very presumptive conclusions. BTW I was very good dancer, and swimmer until the AKI with good medications I still was, the RA was controlled and no problem. I do not agree about your thoughts on it being a disease that will end a normal life and think it is dreadful to imply that there might be a magic cure in diet. So I wish you well with whatever food plan you doing but just think the diet is bonkers and as for curing Cancer it shows a worrying tendency towards delusion. Do read the warnings about it on the main UK Cancer website. And do please read all the other warnings on the web about it, there are many, as it appears to be thought to be potentially dangerous in some of its weirder claims. It gets me as you've still not clarified clean and dirty food so again what is a dirty food ?

Lolabridge profile image
Lolabridge

Not me.

I was in such a bad way and could hardly move at all when diagnosed so I opted for the RA drugs.

The one I’m on now is working brilliantly and there’s no way I would not continue with it until I’m absolutely sure I’m in remission.

AgedCrone profile image
AgedCrone

Heard of it....just another diet that very,very rarely...if ever helps RA.

Sorry to be blunt.......but as we keep advising you.... take the DMARD’s your rheumatologist is offering to you .....nothing else is going to help you until you have the disease under control.

We aren’t all crazy druggies here who love taking pills ....we are all sick people who are being made better by taking the drugs our doctors prescribe....That seems like win-win to me.

It is of course up to you whether you take drugs or not but if you want to get better I really do suggest you try them.

GranAmie profile image
GranAmie

When first diagnosed I was told to aim for a Mediterranean diet but to watch out in case nightshade veg [potatoes, tomatoes, peppers etc] increased th pain. The rheumatologist also advised me to avoid processed foods esp those high in sugars, fizzy drinks, white wine, prosecco, cava and to limit carbs. As I eat mainly salads, nuts, fish and veg and rye / wheaten bread that was no hardship 4me... but white wine, cava did pain me, as i discovered thro' trial and error. I also avoid.. white rice, white breads...fruit juices [sugars!] but take the odd 5 or 10ml of red wine in my water. Prefer oat milk to cow...or goat. BUT the most help has been the biologic infusions... Listening to your body helps too... 4me pain lessens when I know the cause, and learning to pace myself and rest intermittently has been a real revelation. So, I wish you the same xx

vonniesims profile image
vonniesims

I too was told to follow a Mediterranean diet

HappykindaGal profile image
HappykindaGal

That’s a humongous amount of fruit and veg every day. And caster oil enemas??? Oh my. Messy to say the least!

Makes Paddison look like fine dining 🤷🏼‍♀️

forislava profile image
forislava

Well, obviously it's not a popular "thing" to put it mildly... Somehow I missed the castor oil enemas, I thought it was just coffee enemas, can't imagine what the castor oil would do... so the answer to my question is it's a "no"... The healthy diet of course stays, no doubt, but I had to ask. Love your comments guys, some of them made me really laugh which is a hard thing to be achieved these days for me:) I'll steer clear from my known triggers for now - alcohol, sugar, gluten and meet and scheduled my next appointment with my rheumatologist. Unfortunately it's in the beginning of December, but wee - there's nothing I can do about it. My last blood test my CPR is 1.5, but my white blood cells are slightly increased so I'll be talking about this r my GP. Not the she's concern, but I am...

forislava profile image
forislava

The last post was for the Gerson therapy, don’t know why it appears here🙄 obviously I’m doing something wrong with posting so apologies if it’s confusing...

Nothing wrong in posting the questions and asking as RA brings a whole lot of questions to your door and nearly all of us have had well meaning family and friends suggest different diets or lifestyle choices.

Do what is right for you but working with your Rheumy team and keeping a diary always helps.

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