Unreported side effects of RA drugs........ - NRAS

NRAS

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Unreported side effects of RA drugs........

stbernhard profile image
22 Replies

Well, maybe not unreported, but not reported often enough.

Over the last ten years I have ben on 5 different RA drugs, now only on two. The side effects of all of them was that they made me better and/or helped me to get back control over my life and self manage. So thank you Pharma Companies for producing them. Thank you Consultants for prescribing them. And thank you NHS for funding them. I like these side effects a lot.

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stbernhard profile image
stbernhard
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22 Replies
Lolabridge profile image
Lolabridge

Well said and totally agree. We have been lucky and let’s hope others on their RA journeys are/will be too.

allanah profile image
allanah

Such a lovely positive post and I agree xx

Gnarli profile image
Gnarli

Hear, hear! A good point beautifully made. It's all too easy to see just the negative aspects of RA medications.

nomoreheels profile image
nomoreheels

Hear hear from me too! I love reading positive posts such as yours stbernhard. Positive side effects (& thanks) are rarely given. Big Pharma (I so dislike that term) is most often blamed for the meds they put so much work into (& I know they received plenty in return but they are in business after all) so it's good to hear just the opposite. 🙂

medway-lady profile image
medway-lady

Can I add that I've always had great care, kind, supportive and knowledgeable doctors and nurses and in these very strange times I understand why things are so difficult.

Paula-C profile image
Paula-C

Totally agree, I've had one side effect from enbrel, remission for 7+ years.

springcross profile image
springcross

That's a lovely post stbernhard, thanks for sharing it and yes, it's true, where would we be without them. x

AgedCrone profile image
AgedCrone

Absolutely with acceptance & patience there is a drug there for everyone...it’s just a shame it takes some so long to find it.

Boxerlady profile image
Boxerlady

What an uplifting post - and I totally agree 👍

Biofreak profile image
Biofreak

Hahaha you are right. People always report the bad side effects associated with the drugs because they worry about them but rarely say how great they are when they work well. Good post and a good point.

Summerrain14 profile image
Summerrain14

What a lovely post and I can’t agree more. I honestly count my blessings daily for the ongoing care I receive from some many health and social care agencies to allow me to be as well as possible and be as independent as possible. 😊

Very pleased to hear drugs have worked well for you with few nasty side effects. Not the case for everyone sadly 😟 Good to hear a positive story though. 😁

ruth_p profile image
ruth_p

👍👍

RAexperiences profile image
RAexperiences

Wonderful!

Goldsky profile image
Goldsky

Agree with everything you say stbernhard, we are so lucky that we have medication to help us these days, it must have been hell for people in days gone by. Hope you stay well.

Wobbies profile image
Wobbies

So true, and thanks to all the scientists who developed these drugs to make our ives so much better. 👍

cropredy profile image
cropredy

Well done you hit the nail on the head there totally agree with you, stay safe.

Harry_20 profile image
Harry_20

That is so encouraging. Just what needed to hear this morning as I’m at a betwixt and between stage with my second and third drugs. You’re right: the difference between medication and no medication is startling. I gain about twenty years when I have none and lose them once I get medication. That’s got to be worth celebrating and giving thanks for.

fred42 profile image
fred42

Really good post, sometimes we have to be patient but our Rheumatologists do their very best to support us and give us the best possible life.

How wonderful it will be when a test is developed so the best drugs can be determined without it just being trial and error.

stbernhard profile image
stbernhard in reply tofred42

I believe we're just a few years away from on individual targeted drugs.

Angjoplin profile image
Angjoplin

Well said.

Eiram50 profile image
Eiram50

👏🏻👏🏻👏🏻👏🏻👏🏻

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