Just picking your brains.

I have suffered sweats much more than normal( sign my disease is active). I am waiting to start Baricitinib just finished etanercept and am on methotrexate injections.Night sweats are bad at the moment but I’ve now developed this new symptom where I feel like in dripping in sweat especially face and under my chin and neck but no sweat. Anyone suffer this or has an idea what it could be? Thanks in advance.

[springcross]

Did you get them with MTX alone? I'm wondering if it may be a bit of a reaction with the Etanercept, just a thought.

[Hidden in reply to springcross]

I have had it before about 16 months ago only on MTX then ( tablets 25mg) I blamed active RA as things were bad. ( also had a steroid injection)I do think I have intermittent problems with MTX had a chat with my nurse who is inclined to agree. I had a steroid injection nearly 5 weeks ago ( just came to me) could be that wearing off.

It’s great writing things on here it helps join up the dots... now thinking active RA with steroid wearing off.. could be totally wrong 🤦‍♀️😁

[springcross in reply to Hidden]

Or could have hit the nail on the head. I am on the injections and I have noticed that the last few weeks whenever water touches my face, even though I only use water to cleanse my face, my cheeks go very red and flushed looking and stay like that for quite a while, it's a bit embarrassing if I have to go anywhere. I have tried just patting my face with the towel instead of rubbing - it helps a little bit but not that much. I also have started to get hot on occasions for no reason (not as much as you) it's like a mild hot flush but passes off after a shortish while. Most odd.

[Hidden in reply to springcross]

It’s such a guessing game all the time.. no wonder we get fatigue 😂

[springcross in reply to Hidden]

You're not wrong there.

[Hidden in reply to Hidden]

Have you had Vit D checked lately? That is what first set me in that route but without Vit D my sweats are worse.

I have now assumed it’s the low level RA fever they mention as have it every day

[Hidden in reply to Hidden]

I take vitamin D.. I think it’s a mix active RA and steroid wearing off .. but who knows.. just a horrible sensation 😖how’s Oreo?

[Hidden in reply to Hidden]

Adorable naughty attitude but very loving minx

[Mumcon in reply to Hidden]

I’m glad you brought this up I too have terrible sweats and through the night they are worse I’ve suspected it was Methrotrexate . I don’t seem to feel the cold as much either these days Just another symptom with RA 😩

[Neonkittie17]

Steroid injections always make me incredibly overheated and flushed at night but not a wet face etc., but it doesn’t last more than, say 4-5 days and always the first couple the first couple of nights. I have post meno face and neck heat and can wake up damp in the night there, but also Fentanyl and Rituximab are known to do this to so I’m never really sure who is the main culprit. 🤨I do suspect Rtx more but it isn’t all over. As you rightly say when RA is active and not as controlled as we’d like, you tend to have these sweats more. I hope as you start your new med they subside. x

[Hidden in reply to Neonkittie17]

Thanks... ooo what a pick and mix!! Drugs and disease 🥴

[Neonkittie17 in reply to Hidden]

🤪😳As I never had the heat issues prior to Rtx or meno I feel it isn’t Fentanyl to blame. As I started Rtx at the same time as my meno .. I just don’t know. My rheumy said .. These RA meds get blamed for everything!! x

[sylvi]

I sweat from the shoulders up very often during the day.xxx

[Summerrain14]

It is such a mystery RD and the meds at times isn’t it? I tend to get bad sweats when my RD is very active. So hard to know what the cause is especially with a change in meds and the steroid injection a few weeks ago. I hope that they stop for you as quickly as they started x

[Hidden in reply to Summerrain14]

Thanks 🙏 it must be the inflammation in our bodies like flu we are trying to burn the bloody thing to death..😂like a cockroach not even a nuclear bomb can kill it .. I’m talking utter rubbish now 😂😂

[Hidden in reply to Hidden]

It’s that spontaneous combustion thingy again 🤣

[Hidden in reply to Hidden]

😂😂😂

[Durrell]

I get very cross as my dr is always putting it down to the change!! but I have your exact experience you mentioned & mines gone on along time, I hope you find some relief with your on going treatment.

[Kariss in reply to Durrell]

I had my menopause eleven years ago and am still getting horrendous hot flushes! I’ve just come off mtx and didn’t even know it could be a cause. I’ve been on that the same amount of time too which leaves me suspicious! I’d assumed I was stuck with the hot flushes for life but perhaps now I’ll get some relief! I’ve not been able to wear a fleece or woolly jumper for so long - hurray now I can get them out of storage if that’s the case! (They will be very retro!) Hope the moths haven’t got there first!

[Hidden in reply to Kariss]

😂😂it’s the little things that makes us happy. Oh to wear a woolly jumper again 😁

[Durrell in reply to Kariss]

Wow Kariss I am going to bring this up at my next apt, I totally get the not being able to wear fleeces, jumpers etc... I don’t feel that mtx does anything for me anyway, but they keep me on it?? . Well I’m delighted you are now able to enjoy all your winter woollies, I really appreciate your note to me, thank you 🧶

[Boxerlady]

Well, I'm in the hot flushes and night sweats club but it's definitely menopause for me 😰 I've been on Methotrexate for over a year but never had problems until I came off HRT. It's not too bad atm though and it's the only symptom which has appeared/returned so I'm sticking with it for now. Just living in layers (always seem to get cold just before a flush - what's that all about?!) but at least it's relatively easy to deal with while I'm working from home. May change my mind when (if!) I have to start actually "going" to work... 😂