odd arms: Hi just wanted to ask if anyone has problems... - NRAS

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odd arms

snoopy29 profile image
16 Replies

Hi just wanted to ask if anyone has problems in the morning with their arms ? when i go to make the coffee first thing my arms dont want to do what i want them to ? just checking that this is a normal side of ra as my 16 year old daughter was with me this morning and i dont want her to worry so made a joke of it but its an odd feeling, my ra is in my shoulders hips and knees.

many thanks :)

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snoopy29 profile image
snoopy29
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16 Replies
Lolabridge profile image
Lolabridge

Hello Snoopy.

Oh yes RA can affect all your joints and it was my arms and shoulders that caused me the most problems from the start of my RA journey. I couldn't raise them sufficiently to brush or wash my hair, and other toilet matters were a problem too!

From what you have written it would seem that your RA is not under control and that's why you are hurting and not able to use your limbs properly. Morning stiffness. sometimes lasting more than an hour, is a very common feature of RA.

You don't say what treatment you have been given for your RA but, whatever it is, it does not seem to be working effectively for you. So get straight on to your Rheumatology Consultant and ask for a treatment review very soon.

Good luck.

snoopy29 profile image
snoopy29 in reply toLolabridge

Thanks I have just started methotrexate last week so still in the early days , it's odd watching your arms not going where you want them to , thanks for putting my mind at rest 🙂

Lolabridge profile image
Lolabridge in reply tosnoopy29

Good that you're on MTX now but it can take up to three months to be fully effective. Are you taking Prednisolone as well or have you been given a steroid injection? If not I would ask for one or the other to tide you over until the MTX is working well for you.

snoopy29 profile image
snoopy29 in reply toLolabridge

Hi just phoned the rhumatology dep as I am only on nurofen so fingers crossed thank you

AgedCrone profile image
AgedCrone in reply tosnoopy29

I would mention it to your rheumy nurse snoopy...your meds may just need

adjusting ....no point sticking with a drug that might be having funny Effects.

snoopy29 profile image
snoopy29 in reply toAgedCrone

I actually had the problem before I started on the methotrexate but will certainly mention it when I see her thank you 🙂

AgedCrone profile image
AgedCrone in reply tosnoopy29

Before I was settled on my drug “of choice”! I would always mention any odd symptoms.

I learned my lesson by ....despite vomiting every day...staying on a drug for 12 weeks because that was what my first rheumy said was “giving it a good go”.

A lesson well learned!

wishbone profile image
wishbone

I've had problems with my shoulders, arms and hands for years. Absolute murder first thing in the morning! They were really bad when my RA was poorly controlled but have improved since I have it better controlled. Still giving me trouble though.

snoopy29 profile image
snoopy29 in reply towishbone

Sorry to hear that and thank you for replying, just waiting to see if i can get some pain relief until the methotrexate kicks in

wishbone profile image
wishbone in reply tosnoopy29

I hope you get some relief soon. I was just trying to point out that controlling your RA is the only real answer. I used to take the max dose of tramadol and paracetamol but it didn't help very much. Not being able to raise your arms can be a big problem as Lolabridge indicated.

Good luck

KittyJ profile image
KittyJ

I have to do gentle stretches/exercises before I can do anything in the mornings as I get very stiff overnight. Hopefully yours will improve once mtx starts to work, if not I’d speak to your rheumy team as they might refer you for physio to help.

snoopy29 profile image
snoopy29 in reply toKittyJ

Thank you 🙂

oldtimer profile image
oldtimer

I do find that it helps to have a hot shower in the mornings to loosen up my shoulders, but I still look like a little hunched old lady as I creep around the kitchen in the mornings. And I've taken down anything I need from the cupboards above chest level the night before.

snoopy29 profile image
snoopy29 in reply tooldtimer

Good idea 😀

Twitty999 profile image
Twitty999 in reply tooldtimer

You sound like a mirror image of me! 🙄& yes , I loosen up my shoulders & arms under a hot morning shower....🌻

Mmrr profile image
Mmrr

Yes, my arms tremble and lack power in the morning, they often improve as the day goes on. My RA is not well controlled.

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