I've been pondering alot about anonymity and using pseudonyms recently. I've realised that only a very small percentage of us show our true identity in our profile picture with the majority choosing an emoji . I totally understand the need for choosing to be anonymous such as keeping your identity private, levels of social safety, freedom of expression without fear of repercussions. We all discuss pertinent and sensitive issues with eachother that we do not want the outside world to know about. When I joined the group I didnt give it a thought not to show ' the real me' maybe I've been naive!I must admit however, to finding it weird at times corresponding and responding to an emoji as it doesnt feel real! Anyone else feel like this? Don t get me wrong the exchange is no less effective in the pertinent issues discussed just because there is not a real face, it s just a shame that I can t see your lovely faces!
'To see you or not to see you': I've been pondering... - NRAS
'To see you or not to see you'
I don’t want people to know I’m Boris Johnson
Don’t blame you...half the population think he’s barking!
I like old Boris!
See if you can say that this time next year if we are still playing dodge the virus?
I don t want to get into a feiry debate about politics but I agree Boris has certainly not been brilliant in his advice over the Pandemic, but I wonder who would have been. Other countries have not done a great job either although Sweden seem to be doing a good job. But we are living in unprecedented times.
That is one of the reasons a lot of people use pseudonyms and no photos as it makes it much easier to ignore politics, religion and other sensitive subjects where we have wildly different views. This way we can share without getting hot and bothered about, eg, politics. If anyone has an illness or question that’s appropriate to this forum then I don’t care that they are at the other end of the political or religious spectrum....
Boris can be criticized for sure, but I'm in the US and we've got Trump. In comparison Boris is wonderful. I admit Trump sets the bar low... very, very low. 😭
I shouldn't but I will! I have to agree with you there Trump needs to be marched out of The White House prompto! Fingers crossed he will be very, very soon.
But they both have that beautiful blonde hair😂😂😂😂
It s bleached! Nothing against bleached sun kissed hair by the way 😂😂😂😂
I think you will find Boris is a natural blonde...it runs in his family!
I think you might find that Boris being 55 is definitely not a natural blonde. He comes from Turkish decent which I believe suggests darker hair! Fact is Borris has admitted to bleaching his hair so there you go!
Look up his father & his brothers....up close he has blonde eye lashes too.
From what one sees of him ....he hardly seems to own a comb....let alone faff about with Peroxide.
But Mr Trump has been every hue under the sun...& no doubt will continue to tint whatever colour he fancies !
Well I know facts about Boris admitting to bleaching his hair, eyelashes too most probably! But Trump well don t let me go down there! Obviously bleached and a comb over toboot!
That man would admit to anything if he thought it would get attention....but tbh who cares....I just want the comedy act we call a government to forget how wonderful they think they are, get their act together with Wales & Scotland & ...pack up all their egos & sort out the right thing to control Covid, & let everybody have some semblance of normality back in their lives.
The longer they chop & change the more those who are not taking the situation seriously will cause havoc...so if this gets on Google...come on BJ....sort it.....that it what you are paid for!
yes, and Trump's looks even.more fake than mine! At least my dye goes right to the roots ......... (and it's a better shade .... honest)😆
😂😂😂😂 me too as I have alot of grey so blends well. X
unfortunately, I think I know what you mean although I'm still partly in denial!😊
Of course so am I! Comes with ageing i still feel like a 19 year old just don t look like one!
I do know what you mean. Sometimes I look in the mirror and wonder who this ahem, middle-aged lady is, and why is she staring at me!!☺ I would like her to go away!😁😁
No believe in your beauty within and tell her to stop looking with distain at you! That s what I say to my reflection.
You have my sympathy!
😂😂
Jaxine I sometimes have a photo of me and sometimes of the cats or a flower I try to show the real me ,when I post on me as in the Ra trip I feel it is important to be me too. x
Hi Deeb,
You have a lovely face! when I see a real face it makes the connection stronger, it feels more personal and I feel a sence of camaraderie.
I know a mugshot may be important to some. I find more useful the information some give in their profile. In fact I’m reluctant to respond if there’s nothing there or if scant information is given in a post when advice or support has been requested. These can give me a much better idea of someone and their needs or concerns than a mere photo. Then I feel I will have a much better understanding so can try to make a more helpful reply.
Of course agreed as I said, exchange is no less pertinent without a photo I just feel for me personally it can make it more personal.
I only put up a photo after a heated debate about this a while back. I prefer not to, as just don’t like having photos as I feel people are too quick to judge from photos.
I find the profile info much more useful, plus what you learn about people along the way. For example I feel I know Mmrr a bit and can picture her in her new house north of the border without having a name or photo!
Really! well I like the fact I can see you in your sun glasses smiling and looking cool! I get more of a sence what you're about. You look like you have a positive outlook on life. So whilst I've judged you in a sence it's a positive judgement as I would with everyone. Profile information is also positive as is getting to know people based on what they write, it s just putting a face to someone takes on a different dimension and always good. But i do respect peoples privacy.
I don’t have a photo of me because I don’t want to be able to be identified when someone doesn’t lock their post. I can’t see on my phone if a post is locked or not so that’s my reason. As others have said I prefer for people to have more info on their profile to get to know them RA wise, that’s more useful to me but I can understand some people feeling they would like to know what someone looks like too.
Yes of course and I totally respect your anonymity. I also love to get to know people from their profile Information and the exchanges of communication I guess I'm just a big ' nosey parker's its intrigue too. Ftf communication has been vital in my profession as a social worker and trainee psychotherapist. I think the majority will feel the same as you.
Its the same for Twitter, Facebook etc etc and a while ago this came up , so its ok if you want to put up your photo but its also ok that I won't. With ID theft etc its probably not a good idea to put up information about yourself that you wouldn't want to be seen by your next door neighbour. So I'm 30 years old, 5'10' tall, long brown hair and live in a caravan on the side of the M25 !! I'm married to Prince William make and sell clothes pegs and long to live in a Council house in Milton Keynes (anyone who watched Netflix will know the joke).
If I'm honest I think I would emit that kind of personal information on my profile page, not that there is anything wrong with living in a caravan on the M25 and selling clothes pegs to passersby but I think I'd have a problem with the noise levels amongst other things 😂😂😂
I thought the the whole point of using pseudonyms on this sites was that we are here to discuss our RA & possibly other health conditions without Inhibitions , & so that people who may know us or members of our family who may read what we say, cannot identify us & be caused distress by what we write, or stress in the relationship.
At one point a while back it was suggested that members should meet up, & photos be displayed. This was mostly not well received & did cause a few interesting posts...plus some very interesting photos ...rapidly removed when it was realised unlocked HU, posts can bee seen on Google!
Personally I would not discuss my health condition if my name was displayed .....in fact I would never have joined in the first place....but I enjoy the banter & admire the way we all manage to retain our sense of humour when we disagree & how we support those going through tough times. I wonder if that would happen if we Googled that real name & didn’t like what we read?
It really is a personal choice and one to be respected. I have nothing to hide in terms of my face being revealed and could not give a fidley buttercup what judgement I may or may not receive if recognised. I enjoy debating and generally conversing with everyone in a safe environment. Its liberating to Express views, opinions and to share feelings of anxietiey and at times vulnerability living with RA. Offering and receiving guidance, and having a real sence that I'm being listened to and all of which are very pertinent to me. I just feel putting a face to someone s post feels more personal but as I said I respect everyone's decision not to.
I think I'm still in denial about having arthritis so will keep to Marion from Happy Days for a bit 😁
You can get a judge of what people are like though can't you from their replies.
Yes of course I agree, just like a smiling face! I'm in a tiny minority on this one though!
I'd post my real pic here, but idk how to upload in a reply.
Yes just go onto your profile page it says ' edit profile' press on that and you can then download a picture. But hey no pressure from just because of my post!
Well, all I can say is that I'm doing a great and noble service to everyone by putting up a picture of my cats instead as they are far prettier to look at than I am!! 😉😁😁
And your cats are beautiful x
Oh no, please not again! We had this conversation a couple of years ago when a member wanted us to post pics of ourselves. No, no, no. As has been said I think you get more info from their profile than a pic, we've to be so careful nowadays, & we all know once the weekend comes what crawls out of the woodwork. If a post isn't locked to community anyone has access to our image. I know anyone can join & then delete their account but what have they had access to in between? Not my image for sure.
I was not aware of this and I make no judgements from previous posts. I was just curious but with no Intention of you guys changing your profile pictures. As I said great communicating with you guys just like to see your smiling faces. You do get information from our profiles but i just like to put a face to you. Total respect you are saying ' no no no no' I personally don't give a fiddley leaf if you see me. This is 'me ' warts and all sometimes suffering and sometimes not! X
Oh don't worry Jax, I wasn’t meaning others can't or shouldn't, not for me to say. It's just I don't believe that computer security software are infallible so anything that can can make you identifiable should be kept to a minimum & what's more identifiable that your image?!
To be honest I think it depends on what you post and how personal your Information is. I only post pertinent information about my journey with RA . All my friends and family know about my condition so I have nothing to hide. If my consultant or nurse was to see my posts - where at times I may speak derogatively - then that might help them to think about what I'm experiencing emotionally !! I have no interest in what anybody else feels about me or what they might judge. But as I said it s a personal choice and so therefore needs to be respected
Of course, as I said. Sometimes though a post can evolve & move away from the initial topic where you could reveal other than the condition itself which you may not wish to be in the public realm. Then your pic is there for everyone to see, that's what I'm meaning & where I think we need to be careful, particularly on those posts which aren't locked. I also think we've just to be mindful that there are those out there who can manipulate the software security, one reason on joining it's suggested that to keep anonymity we choose a non-identifiable username. Also HU remind us not to share your real full name, not to share your contact details & not to share any other piece of information that could identify you. Also if you wish to remain anonymous it is highly recommended that you do not choose your avatar to be an image of yourself. I do. Maybe I’m more cautious because both my h & I are on Facebook, including images of my h though not myself, yet neither of us know how, we didn’t join up to Facebook, see what I mean? Agreed, it is personal choice & do respect that.
I think my post has become rather contentious about putting a face to your profile. I totally respect you all for your anonymity. However, for me I don t care who reads my posts and may recognise me in the streets. This is my life living with RA, if you judge me for that then I don t need you in my life! Peace and respect guys. Xxx
This isn’t contentious.....just a lively discussion. It only gets contentious when we talk about Clint Paddison 🤭. You do what feels best to you.
Eek - careful HH, you've just mentioned the dreaded name. I'm off to cross myself and sprinkle some special Paddison repelling water just to be on the safe side .......!😱🤞
I've just thrown some salt over my shoulder! 😂😂
yes, but was it the correct shoulder? I'm never sure so do both just to be covered! 😳
I really hate photos of myself, I actually don’t have that many. Looking back, I do feel a bit sad and vowed to take more.
I'm not that photogenic either! Xx
My face is wrinkly,lupus has played havoc with my hair.
That’s why I don’t post my photo,