Hi! I wondered if anyone whose on methotrexate injections plus hydroxychloriquine has suffered with cystitis flare ups?? I’ve been taking the drugs for 8 years now and apart from a very rare flare I have had no issues until the last year! I’ve now been told after countless cystitis flares that I have interstitial cystitis and there is nothing that can help me! One doctor mentioned it could be the methotrexate that has ruined my bladder lining? So now wondering if it would be worth coming of the drugs to let my bladder rejuvenate obviously I would not do this without speaking to my specialist but would like to go and see him armed with a bit of info!
Methotrexate/cystitis : Hi! I wondered if anyone whose... - NRAS
Methotrexate/cystitis
![Pixieflower profile image](https://images.hu-production.be/avatars/89d8158080844dbeaa8d0a6d5976dfa5_small@2x_100x100.jpg)
Written by
![Pixieflower profile image](https://images.hu-production.be/avatars/89d8158080844dbeaa8d0a6d5976dfa5_small@2x_100x100.jpg)
Pixieflower
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
Hi pixie I had it years ago and had to get a gel put through my bladder every month, it cleared after about 8 months then I got RD some people have no luck xxx
I took both those for 2yrs 5 months without cystitis. Leflunomide caused tender bladder and UTIs though.
There’s good info on interstitial cystitis on NHS site.
I use D-Mannose now, if my bladder starts playing up.
Never had cystitis - taken MTX orally and now injectable for 40 years and take HCQ.
Not what you're looking for?
You may also like...
Stills disease or other arthritis pain
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief...
Methotrexate and adalimumab
I have been using adalimumab for 3 years for my Ankylosing spondylitis and it has been great for my...
Hydrotherapy pool?
Hi. I'm lucky enough to be going on a cruise, as I can't fly now as it causes too much pain, and...
guided steroid injection
I’m due to have a guided steroid injection in the big knuckle joint on my foot to alleviate pain,...
Methotrexate versus biologics for RA
HiI've been taking methotrexate and now also hydroxychoroquine for about a year for RA. My...