Newly Diagnosed: Morning, Thank you all for the advice... - NRAS

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DBT776 profile image
8 Replies

Morning, Thank you all for the advice on my last post about Sero Negative.

I am about to start on Methotrexate tonight, reading all the side effects really worries me. I am so busy and about to be in a show, Does the nausea last only on the day of taking the pills or is it every day. I am quite nervous and have been trying to put this off but I know I need to accept it. I still live a busy life and exercise regularly the RA is not limiting me right now.

Any comments welcome.

Thanks

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DBT776
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8 Replies
allanah profile image
allanah

I always took mine at night so I could " sleep on it" and the night before my day off. But same day each week, eg for me Friday night !

I never had sickness even on the max dose. I did get tired. You won’t know how methotrexate effects you until you try. Take it the night before your less busy day.

Boxerlady profile image
Boxerlady in reply to

I had no problems with nausia. I initially had fatigue the next day (24 hours after the dose) so I used to take it with my evening meal the day before my quietest day of the week. It improved with time although I had low mood problems for a couple of days each week so they increased my folic acid to 6 days a week which sorted that out. Lots of people take it with no side effects so try not to anticipate them (difficult, I know.) I had some great advice on here about drinking lots of water the day before and the day of taking it and I sure that helped too.

AgedCrone profile image
AgedCrone

I never had nausea with MTX......took them like Smarties...took Folic Acid 6 days a week..& all went well from Day 1.

STOP reading what has happened to other people, and look forward to being one of the many, many people who take methotrexate with no trouble at all!

Like Allanah, I took mine at night with my evening meal ,drank plenty of water, then forgot them.

In time you are probably going to be prescribed many drugs ....if you worry yourself to death about every single one of them your life won’t be worth living .

So listen to your rheumatologist .....take the drugs he prescribes and I hope you’ll go for many many years without undue discomfort.

ircmannj profile image
ircmannj

Don't worry about it, I've been taking it for 5 weeks and only twice have I experienced fatigue a couple of hours later, for which I took a 2 hour nap. A trick I learned (you can google it) is to take the methotrexate with a Mucinex DM (Robitussin) pill and then take another Mucinex DM (Robitussin) 12 hours after, it's supposed to clear up the symptoms from methotrexate. Also, take folic acid every day except the day you take the methotrexate. I hope everything goes well. Just as yourself I'm staying active at work, working out and doing some yoga a couple of times a week. Also, don't forget nutrition, lots of water and avoid inflammatory foods.

Best Wishes!

stbernhard profile image
stbernhard

I had some nausea when I started on MTX 10 years ago, but then started to take the folica acid every day except MTX day and that helped greatly. Then went onto injections and am still on it today, without nausea. I was always willing to welcome the side effects knowing that without MTX my body will get irrecoverably damaged. I hope it will go well for you. It's ok to worry, there is a lot to learn. My advice is to learn as much as you can about RA, how it affects people, fatigue, medication, self management etc. A very good source for all of this is the NRAS website and their help line. Please do not use Dr.Google. All the very best.

Nansea74 profile image
Nansea74

Hello, I’ve been reading all your comments especially about the Folic Acid. My RA Dr has me taking it everyday. I’ve been getting some side effects from the MX , tired lasting 1-2 days after taking it and it changed the color of my hair when dying it. Has that happened to anyone

Buckybri profile image
Buckybri

Everyone is different I really struggled with the mtx to the point where I was going to stop taking it I dreaded the day when I took it even with folic acid everyday it didn’t help , so was put in the injection and now hardly any side effects ,

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