Do you feel chilled inside, like your blood is chilled? - NRAS

NRAS

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Do you feel chilled inside, like your blood is chilled?

Brushwork profile image
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I started Benepali on Tuesday, and often feel chilled inside. I had the same weird thing on Amgevita.

Also felt woozy/dizzy/lightheaded, almost hungover for 24 hrs.

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Brushwork
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Mmrr profile image
Mmrr

I think I know the feeling you mean, when I initially became unwell feeling cold and chilled was one of my presenting symptoms and lasted for around 9/10 months. I'm now hot.

But occasionally I can still get that cold blood curling feeling, usually when I'm not feeling so well and it can be difficult to warm yourself up.

It can be quite disconcerting.

Likewise with the dizziness, worse when I'm not feeling so good.

I have reported these issues to rheumatology but they can offer no reason.

For me it is not related to medication.

Most strange.

Dobcross1 profile image
Dobcross1 in reply to Mmrr

Like you Mmrr, I often still get this but it started pre diagnosis. I can only describe it like cold water pouring through my veins. It's now interspersed with feeling like my head and body is boiling hot and about to explode! (Which I've being putting down to the MTX but maybe it's not). Oh the joy of all this!🙄🙄

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