I have taken this week off as I realised yesterday after completing first run of events I had just gone that little too far. Working evening then a day then a evening then a day meant not enough down time and the team all have colds and I felt crap yesterday.
So I slept for 12 hours with a few wake ups during the time. However today has been down time chilling and be kind to myself. I have told work I will not be in all week and tomorrow I have a review with my local GP and also getting a letter for work to state my illness and the need for rest is part of RD.
I then go down to 4 days a week from next week too.
PIP form requested and now looking for a home closer to work as 1hr commute not good either.
Well done for giving yourself time out and taking control of the situation. I hope you have managed to avoid picking up the cold and that the GP is helpful. Make the most of your week off and spoil yourself. x
It does take a while to start listening to your body and putting yourself first, but it's good when you start to learn to do it. You will feel better in yourself once you do this all the time. I'm still learning yo do it as well. X
It’s never easy to except that you can’t beat this disease... mind over matter doesn’t work with RD. there are days I do NOTHING and am still tired HATE IT!!! . Good luck with the house hunting.... PIP is a good step it’s not easy to see on paper how much RD controls your life.. your doing the right thing xx
• in reply to
Thanks Hidden been a tough week accepting my needs for now and letting the fatigue be known and talk about it. Writing to HR and my boss today was very cathartic, as I was able to say this is how I am and used NRAS info too to help them understand. This fatigue is just so draining, pain in one way is easier to understand.
• in reply to
Yes your right. I’ve always said that fatigue is the worst symptom of RD for me there’s absolutely sod all you can do to over come it. Pain there is medication not keen on the stiffness but at least my brain works but fatigue!!!!! My life just passes by🥺
I think we all have that problem that we try to do more than we can do at times,I’m not as bad now as I’m 4 years in, but in the beginning I would go at it hammer and tong,I think now that I’m retired medically I don’t have to rush which helps but I think you moving nearer and working less days will help you,good luck xxx
Hi Deeb2908, I felt like this earlier in the year but once the dmard started to properly kick in (it took ages!) I felt so much better. I hope given time you will also see an improvement. Take care.
sorry, I just meant do you inject with a bio similar drug such as Imraldi. I was on Humira, the biological version of this but prior to that I was on MTX but it wasn't enough for me, to keep the pain at a level that I could still function, as I wanted to.
Right ok, so the rheumatologist is still monitoring your drugs, if you like, trying to find something that will help to stabilise you? I went through this, it takes a long time because the drugs build up. Once/if you find a drug that does stabilise you, then hopefully, you'll feel more in control. It's very difficult and stressful trying different drugs and waiting. I sympathise. x
Oh my darling it has been very hard for you over the last week or so hasn't it. When you see your dr. get him to put you of sick for the rest of the year so at least you will be able to enjoy Christmas.xxxx
Good luck deeb2908. It sounds as if you are having similar problems to me and well done with making the big leap of looking after yourself. You work to live you don't live to work!
Good for you! I cannot imagine how exhausting it must be to have to go to an office everyday. I'm fortunate in one way as I run a business and have a manager. I've recently stepped out of it to reduce my stress levels for a while and get back on track. Although, I'm never away completely!
I used to have my own business for 20years and that in itself it stress too. So good in many ways you have a manager you can dump some of the work on to (in a nice way of course). If I could I would go freelance again I did enjoy the freedom but with RD I know I am better off at a company for the time being.
It was the stress of 6 years growing my biz that probably triggered my RA. Now I have a team of people which is what I always aimed for and worked like a slave to get there, things are so much easier. I do the strategy and marketing strategy now. I don't get involved in any of the client work and day to day stuff. Phew!
Hopefully a bit of time off will help you and that your feeling better for Xmas. It's been a long struggle and sometimes you just need that rest. Your body will thank you for it, enjoy your week off and just spoil yourself rotten 😊
Local GP has done a sick cert for this week with actions needed ie reduced hours and flexibility by company and will do them monthly as I work thro MTX. Doing a full blood update so he can check where I am to where I was pre diagnosis in July and agreed with my decision on trying to stay off Prednislone as long as I can (day 6) .
So now sit back and enjoy my fresh coffee and let MTX hangover session begin.
Sounds a good plan, Get your body back to full strength then go again but not too mad.
Looking for another home nearer to your workplace to cut down on the commute also seems a good idea. Be aware tho' that looking for a new home has its own stresses, it's often difficult to get something that lives up to your expectation.
Good luck with your application for PIP again be aware it may take time.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Sulfasalazine added to the mix😒
Rituximab - 6 weeks in to first course
Day 1 - Taking Naproxen for the first time
