Never ending story: Hi all. Hope Everyone is as well... - NRAS

NRAS
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Never ending story

Eiram50
Eiram50
12 Replies

Hi all. Hope

Everyone is as well as can be, especially now the dark nights and miserable weather is kicking in.

Some of you may remember my spectacular fall in November, where I shattered both wrists. Well, they didn’t heal properly so I’ve just had surgery to repair. Pins and plates and they then took bone from my Pelvis too. I will be having the other side done after Christmas- same procedure.

So, I was a bit fed up when I received a letter today ( following MRI), after visit to surgeon, to confirm that alongside the further surgery I need on feet, I also now need to have my ankle

Replaced.

Trying to be positive about it all but this constant assault on your body, can just suck the life out of you, can’t it?!

The gift that keeps in giving .......

12 Replies
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sylvi

Oh my darling I am so sorry your going through this hell, as Ducky from NCIS says when your going through hell keep going. I know when I saw this episode it made sense I am not sure how it looks in print darling. Hugs from me.xxxx

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Eiram50
Eiram50
in reply to sylvi

It makes perfect sense. Thank you Sylvi. X

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hatshepsut

I'm so sorry to hear this, you don't deserve all these complications. I know exactly what you mean, I have had three and a half years in and out of hospital, after emergency surgery on a burst abdominal abcess caused by tocilizumab. Battling anaemia.

Awaiting an appointment at the end of this month to see about a hip replacement.

As you say, this wretched disease keeps on giving.

All I can say is that you will be in my thoughts. I know you will cope, just wish it wasn't necessary. Please do keep in touch, and let us know how you're getting on.

With love and hugs, Mavis xx

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Eiram50
Eiram50
in reply to hatshepsut

Thank you Mavis, that’s kind of you.

I do hope you hear quickly about your hip. I’ve had both mine replaced and the difference is phenomenal! X

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janmary

Feeling for you. You must feel so frustrated - trouble on trouble- hope your surgery has good outcome

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stbernhard

You really are put through the mangle! Keeping positive through all this must be very difficult, but then what's the alternative? I am one of the lucky ones, my journey through hell only lasted 18 months and then I got better quickly and now am in remission. I wish you all the strength and send you big hugs.

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Eiram50
Eiram50
in reply to stbernhard

Thank you so much .

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Pulfs

Oh poor you that really is bad news, I fell and broke my wrist at Christmas but luckily it healed ok but not much bend in it now. I know how you feel about RA over last 12yrs have had both knees and hips replaced plus shoulder and right hand knuckles, don't kniw what yours is but I'm sero positive and only thing at mo keeping it ok is my biological infusions of retuximab. I really hope you're ok and the ops go well, seems life can be unfair sometimes but know it's hard but stay positive. Friends say to me I always seem upbeat but they don't see me on my own but I paint my smile on and enjoy life.

Thinking of you and hugs to you xx

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holly-willow

I am sorry to hear this Eiram but know how you feel as I am in the same position. I am waiting to have a complete shoulder replacement through falling nearly two years ago & rupturing the tendons there. The pain is awful & I can’t lift my arm up at all. However I also need knee replacements & my toe nails removing. I had an op to remove piles in April as well. I have been told that there has to be 6 months between the operations in case of infection. Have you been told that?

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Eiram50

Lord you’ve got it all going on!

No I’ve never been told that I need 6 months between ops.

4 years ago, I had both hips replaced together at the same time and then 12 weeks later, both knees replaced together, at the same time.

This time, once more, there will be 3 months between this surgery and the same op on the other side.

I wish you the very best, going forward x

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holly-willow

Thank you for your replay Eiram. I have also heard of people having operations done at three or four months apart so I can't understand why I am being told this. It is making it all hang out for such a long time. It has completely put this year on hold for us and looks like it will be the same next year. Wow, I can't imagine what it must have been like for you having both hips done together and then both knees together. Talk about not having a leg to stand on! I wish you well too. x

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nanawilson

Don’t know how you are keeping positive I’m fed up ha I had wrist fused and ulnar head replaced now need other wrist done which I’m putting on hold for now as I need ankle fusion hate this disease😡 good luck

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