RA my life long companion

[Anonymousgal]

I have never posted before but have read extensively. I have had RA since I was 21 and I am now 74. I also have been on MTX for a long time, since 1992. I am awaiting a CT for scaring on my lungs. Has anyone else had this happen to them.

[Mmrr]

Welcome.

I cannot contribute anything to your question , but just wanted to say hello.

[Anonymousgal in reply to Mmrr]

I have a CT on Friday which I hope will shed more light on things. Hi to you too.

[sunnyweek]

Hello and welcome.

I know that methotrexate can affect lungs. Maybe you started with a dry cough or/and shortness of breath for them to suggest a scan. I hope they can soon sort this for you.

Methotrexate caused pneumonitis with me and I had to come off it permanently. Long term steroids were needed. I don't think scaring is quite the same. Pneumonitis is inflammation of the lining of the lungs. I wish you well for the scan.

[Anonymousgal in reply to sunnyweek]

Thanks for replying and I hope I’ll have good news

[wishbone]

Following a CT scan, I was told I have scarring on my lungs 3 years ago. I'm not sure they are certain exactly what causes it, but my chest consultant reckons it was my RA and not methotrexate, and I did develop a nasty persistent cough during a prolonged RA flare from hell not long before being diagnosed. So that seems to fit in with what my consultant thinks.

[Ferret18]

Hello Anonymousgal welcome to our site. I’m new to it too but it’s a great place to offload, ask questions or just scroll through and see what’s happening

Hope your scan goes ok

[oldtimer]

RA can affect the lungs, as can the treatment for it. Hope that the scan doesn't show too much damage and you can continue your activities as you want.

[JFlay]

Hello, just to wish you all the best 😊

[Darkrose58]

I too was checked for this, fortunately I didn’t have any scarring. My Rheumatologist told me this was associated with RA not drug use, wishing you well, good luck.

[charisma]

Hi, you’ve done amazingly just to live all this time whilst coping with RA.

Welcome to the community. Wishing you well for scan outcome.

[Hidden]

I have Bronchiectasis with my RA. Strange thing is that I had to stop using MTX for a few months while I had Chemo (Breast Cancer) and my lungs improved. Since I started MTX agai my cough has come back. But I had scarring before I started on MTX and before my Bronch diagnosis.

[Anonymousgal]

Thanks for all the encouragement. It means a lot to me

[dembonesDAMNBONES]

My rheumy has been trying to get me on mtx for at least a year.

I already have lung scarring, TB as a boy and emphysema diagnosed 2003.

Maybe he's tryna moider me?! Lol.

[orange33]

Hi I'm new to this site as well Been on Mtx for years,73 now.

did not know about lung problems though ! Hope every thing go well for you with the scan.