Ritiximub and flares

[Phoo2]

Hi everyone

Haven’t been on here for ages but I am now having my 6 th flare after my 2 infusions and am really concerned about working .

I am a single parent with 1 girl and got made redundant in jan .

Huge financial debt as I gave spent every penny I could get my hands on for various treatments

But still getting flare after flare

So disappointing

Any one else using ritixmub ?

[Jillyanne]

Hi, I am om Rituximab and have just had a flare that required a steroid injection and liquid morphine.

Speak to your nurse and if you are having money problems speak to Citizens Advice. They are brilliant

I don’t understand why you paid for various treatment that git you into debt ?

[Phoo2 in reply to Jillyanne]

For 3 years I was trying all sorts of drugs which weren’t working . Got completely fed up and decided to take my heath into my own hands . Bought ozone kit. Rife machine , Pemf machine , laser , hydrogen gas machine , infra red saunas

All really help and don’t regret spending the money . Lots of scientific research about how they help .

A chap called Marcus Freudmann has a website called truly heal .

I found it to be very inspiring to take charge of ones own health

[oldtimer]

Please contact your medical team if you are still having uncontrolled flares for advice on your treatment. And it sounds as if you need some other advice and support too - are you in the UK?

[Phoo2 in reply to oldtimer]

Hi yes I’m UK

I have already had a chat with them . They gave me a steroid injection which didn’t help at all so back in contact with them ...,,I think they want to give the drug more time

[Phoo2 in reply to Phoo2]

Thanks for replying - it’s nice not to feel alone 😀😀😘

[oldtimer in reply to Phoo2]

I know it's often difficult to get an appointment with Citizens' Advice, but if you are in debt, it's well worth it.