Methotrexate : Hi. I have just started back on... - NRAS

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Methotrexate

lyns62 profile image
10 Replies

Hi. I have just started back on methotrexate after a 2 month break due to dizziness and shortness of breath. Tests and bloods are all fine. I'm taking 20mg. I have started to feel breathless again. HasThis happened to anyone???

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lyns62 profile image
lyns62
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oldtimer profile image
oldtimer

this page :versusarthritis.org/about-a...

includes information and advice about breathlessness and methotrexate.

Autumnlouise profile image
Autumnlouise

No but this didn’t work for me at all

nomoreheels profile image
nomoreheels

If it's affecting your breathing again you really should report it to your team, especially since you've experienced it before & the decision was to halt it. We all know that MTX can affect the lungs, it's listed in the PIL, so phone your Rheumy helpline, seek advice. It could be they'll recommend halting it again or reducing your dose to see if that eases your breathing but only they can advise medically.

pd118 profile image
pd118

I flared then went through lesson how to inject myself - love - read online gets into body 70 % better than pill - took me out of flare

in reply to pd118

Lyns62 isn’t flaring pd188, she’s got shortness of breath.

CaroF profile image
CaroF

I’m on 17.5 mg and ok but everyone is different. I would flag it straight away to your rhuemy doctor or team and take their advice. Good luck x

Spaniellady profile image
Spaniellady

Hi Lyns64, how are you getting on now?

I have stopped due to similar side effects, did they come back when you restarted?

lyns62 profile image
lyns62 in reply to Spaniellady

Hi. The shortness of breath stopped after about 4 weeks but also had a ferritin infusion as I have low ferritin so all is good now. I have been prescribed Sulfasalazine. They give me a really upset stomach and diarrhoea but it should all settle soon. Hope you get better x

Spaniellady profile image
Spaniellady

Oh that's encouraging. Glad you're on the up. X

lyns62 profile image
lyns62 in reply to Spaniellady

Thank you. Hope this one works x

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