Psa misdiagnosed

[Dan13rheumatoid]

Hi has anyone had problems with misdiagnosis in the u.k. for psa

[Nessa28]

I have been diagnosed AS now it's being disputed and is more likely PSA but all drugs have been stopped whilst they decide . 🌷

[Dan13rheumatoid]

Dr said gout. Dermatologist said in there humble opinion Psa as he can see I have joint problems and Dactylitis toes and fingers. So even though I have an upcoming rheumatologist appointment he made the point of stating in letter to dr I need to see rheumatologist.

[Sarahd1609]

It’s taken 5 years to be diagnosed with PsA for me. They’ve said I have AS as well but they thought I had reactive arthritis 1st the RA and now PsA. It was more tricky for me as I don’t display any psoriasis but I’m now on Otezla and it seems to be keeping flares to few and far between. I’ve been on dmards, anti tnf’s and other meds. Xxx

[Nessa28]

Morning , I didn't word my comments well . I'm sure if I hadn't of reacted to the Imraldi , and was still on the Humeria I would have been reviewed rather than taken off and left to go into this rubbish state . To say I feel rough is a understatement . My feet are so sore I'm struggling and I can't turn my neck to the right it popped whilst turning it reversing and that's it now forward only . Honestly today if I was a horse I'd shoot me . I have to say I'd forgotten exactly how stiff you get but it's creeping back slowly . You've all been a fabulous help and support xx

[lolamylo]

Only a suggestion, but I am aware that Consultants will adjust diagnosis to make it easier to get funding for certain biologic drugs which are only funded for certain types of Arthritis. If you have RA they might change it to PsA to obtain a drug which they think may be of benefit. So I suppose you could say it is manipulating the system!

[oldtimer]

My diagnosis has been changed several times over the years but it doesn't really matter to me as long as I get the correct treatment. What I really hate is when someone puts down what I am saying as though it doesn't matter and is not significant - and then proposes to put me on potentially toxic medication. I prefer I proper discussion between the expert on the disease in general (them) and the expert on my disease in particular (me).

[Nessa28]

I had gout twice big toe I was told it was because I glutted on strawberries . It was never investigated but boy does it hurt x

[Dan13rheumatoid]

I have now seen my rheumatologist and they agreed psa diagnosis. Have now started on methotrexate and will see how it goes.

X-rays show dip joint deformities but radiology say it’s likely from birth, I told my rheumatologist having had my toes all my life and occasionally looked at them they have never been bent sideways like that and never given me pain until may 2018.

Also radiology on first x-ray said I had remodelling of third toe likely from a previous healed fracture, x-ray from couple months later didn’t say anything about it so I requested my x-rays and it’s actually fifth toe that has remodelling from previous fracture clear as day, makes me think second radiologist just copied what first radiologist put and when couldn’t see third toe previous fracture didn’t say anything.

Having viewed my own x-rays looks like in a couple of months further dip joint deformities have occurred will show and discuss with my rheumatologist, who only had access to what radiologist had put and not the actual x-rays.