why dont i feel/accept i am ill: this may sound daft... - NRAS

NRAS

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why dont i feel/accept i am ill

pauluk60 profile image
12 Replies

this may sound daft but i cant seem to accept that i am ill with arthritis or even the ickys just feel as though going to get up and walk proper (doubtful0 and that the ickys will just die a death cant get myself to think disabled and ill feei as strong as an ox but cant go nowhere because of legs and being sick well sos to go on i was at going to Krakow 3 days 175pounds each but legs wont go up stairs never mind up to plane and round Krakow then having a meal while i am here does anyone remember ryanairs penny flights all round europe if you did you use them i went to Dublin for 4p me and wife cost more to park car

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pauluk60 profile image
pauluk60
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12 Replies
dtech profile image
dtech

I like krakow. Been there a few times. Prague is another great place. If you can’t walk, what about wheelchair? Then assisted boarding?

And yes you can get good deals from the budget airlines, just have to keep an eye out for alerts.

pauluk60 profile image
pauluk60 in reply to dtech

hi dtech good reply thank your giving me options would love a trip into old Europe i suppose not so old now but pics looked good just renewing passports wife not great with airports but ill sweet talk her 'your going' pack the bags

Mmrr profile image
Mmrr

Pail, I struggle sometimes to accept that I am ill too. Some days my mind goes into overdrive and I mentally plan out things, accept invitations and even book tickets to do things, then crash , wallop and I'm too fatigued to go. I've lost sooooo many tickets for theatre and films and had to call so many outings off at the last minute.

Having also been too ill to go on 2 holidays abroad, we now just book for more local holidays , usually a house somewhere, so that if I'm not to good I can still go and rest up. A change of view mainly but hey ho, it's good for the soul !

I'm hoping to go up to the North of Scotland next week, we have a house booked up at Kinlochewe. Beautiful.

The last time I flew I booked seats with extra leg room and priority boarding. It did help but the journey completely fatigued me and I slept most of the time I was there. It wasn't worth the effort , Scotland will do for now !

pauluk60 profile image
pauluk60 in reply to Mmrr

high mmrr well ithink were in same boat i was daydreaming about walking round Prague/Krakow tried to stand up and fell back in chair with buckling so i think i will follow suit with you and book somewhere here i like fishing so theirs plenty places but good reply brought to earth

Mmrr profile image
Mmrr in reply to pauluk60

Some gentle relaxing fishing in the great outdoors sounds like a wee tonic. Enjoy.

pauluk60 profile image
pauluk60 in reply to Mmrr

not so relaxing if get into big barbel or pike fun and games then

in reply to Mmrr

We stayed a few days in Kinlochewe a couple of years ago. Lovely area. Just spent 2 nights in your territory and had a little walk in the Pentlands on saturday. Nippy wind and rather surprised to be in a brief snow shower, but lovely to be in the hills. Back home and OH totally whacked but happy (asleep already). What he could do was titchy compared to a year ago and marvellous compared with 2 months ago. I hope you enjoy a change of view.

Mmrr profile image
Mmrr in reply to

Wester Ross is one of my favourite places. The sheer size and ruggedness of the area is breathraking. Can't wait to go now.

bencar profile image
bencar in reply to Mmrr

Kinlochewe is and the surrounding area is lovely, been there lots of times.

Paisley58 profile image
Paisley58 in reply to Mmrr

I can so relate, you acurately summed up my entire existence. In my head there is nothing wrong and I can do everything, R.A and Chronic Sarcoidosis doesn't exist until the condition reminds me that I am to exhausted, or in to much pain to 'join in' and that's my usual dose of reality.

What's worse is friends and family just don't get it now that I no longer accept invitations anywhere. I quit booking tickets for things, because I'd get so depressed that I couldn't go and feel like crap letting who ever was booked to go with me down.

I now respond to all invites with 'we'll see' and usually confirm on the day whether I will be in attendance or absent. If it's a booked event I just say no and if I am able to get tickets on the day fab, but I don't set myself up for disappointment. However, I like your approach Mrr, holidaying in a home away from home; never thought of it but I am going to look into doing that asap, thanx

Mmrr profile image
Mmrr in reply to Paisley58

It works for us and causes no stress.

pauluk60 profile image
pauluk60 in reply to Paisley58

wife does not get shes hard as nail just get on with is her no tabs shes a sod

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