Toe: My toe is paining me 🤦🏻‍♀️🙀😿should it be bent... - NRAS

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Toe

Deejojo profile image
23 Replies

My toe is paining me 🤦🏻‍♀️🙀😿should it be bent over like this ??? Think I need to see gp

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Deejojo profile image
Deejojo
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23 Replies
wishbone profile image
wishbone

That looks like how my big toes were when they started to deform many years ago. They are much worse now. Can't remember when rheumy last looked at my feet, but my podiatrists reckon they are typical RA deformed feet.

Is your RA under control?

Deejojo profile image
Deejojo in reply towishbone

I’m on benapali hin

Deejojo profile image
Deejojo in reply toDeejojo

Hun

wishbone profile image
wishbone in reply toDeejojo

I was on methotrexate for 9 years. It didn't stop my feet deforming but the process was very slow. Due to side effects, I stopped all meds a few years ago and it was during that time period, when my RA was uncontrolled, that the deformity speeded up.

Deejojo profile image
Deejojo in reply towishbone

Should I see gp about it do u think 🤔?? This is my 3rd biologic x

wishbone profile image
wishbone in reply toDeejojo

If it's hurting then yes, it might be best to see your GP.

Podiatrist will help. Mine has shown me how to tape my big toes to help keep them straight. Not sure how long term it is

Amy65 profile image
Amy65

My toes are the same due to RA their also sore gonna ask my rheaumtoglist next month what he thinks amy

AnneField profile image
AnneField

You poor thing : (

Mine are exactly the same and as wishbone says, they are textbook RA toes. Mine were like this before diagnosis and I'm still on the DMARD merry-go-round but I find that Deep Freeze spray (or Eskimo Joe spray from Poundland) helps a little with the pain.

Do make an appt with the doc on Monday won't you x

marie66 profile image
marie66

Mine are sore and were turning too. Podiatrist made me toe supports and they kinda keep them in a better position for walking- it's still painful but not as bad! M x

wishbone profile image
wishbone in reply tomarie66

Podiatrist supplied me with orthotic insoles for my feet, but no one ever suggested toe supports...I hope they help.

marie66 profile image
marie66 in reply towishbone

They do help. They keep them a bit straighter! Lol M x

medway-lady profile image
medway-lady

Mine was but saw a surgeon and last October all straightened and released and pinned and plated. So minor scaring and no pain and pretty feet that mean I can wear normal and heeled shoes. Chucked away the insoles and never looked back. Must be deformed over 25 degrees and then can be corrected. Best thing I've had done for years.

Deejojo profile image
Deejojo in reply tomedway-lady

What does 25 degrees mean hun ???

medway-lady profile image
medway-lady

Big toe had curved over towards second toe with the outside gap being over 25 degrees. Put your foot down an a flat surface along say the edge of a tile and look down if the curve is over that you can see it go to GP and ask for a refferal to a surgeon. Insoles never helped me and I've had Mortons Nuromas removed twice too on same foot. The other foot completly normal.

Deejojo profile image
Deejojo in reply tomedway-lady

Sorry to ask again but I’m not good at maths 😢

wishbone profile image
wishbone in reply toDeejojo

Google up an image for a 65 degree template and it will give you a good idea of how much the the toes need to skewed inward before they'll operate.

Unfortunately I think my toes are a bit worse than that. :-( If anyone's interested I've started a new thread with a photo of the 'orrible things.

medway-lady profile image
medway-lady in reply toDeejojo

Its the distance from where your big toe should be to where it is now. My left foot was like wishbones which is a good shot of before my operation.

BonnieT profile image
BonnieT

My mom’s podiatrist called it hammertoe but it was much worse than yours. She was never diagnosed RA. 20 years ago her podiatrist recommended I have surgery on mine to prevent it from getting worse. I declined. My toe is the same now as it was then. Sometimes tie pain can be gout caused by certain foods we eat. My body makes stones (kidney, gall) and the same things that cause the stones cause gout. And gout can happen in other joints as well. I’ve had it in my knee as well as toe.

Tricksy61 profile image
Tricksy61

My toes are starting to do this but bending the opposite way going over the top of my big toe

Matilda_1922 profile image
Matilda_1922

My 4th toe was painful remember tripping over my son’s weights. Now bruised and swollen.

I’m not going to worry my GP hopefully it will heal. I’m on antibiotics for a chest infection so hopefully these will help my toe as well as my chest.

Bingo2004 profile image
Bingo2004

Hi There,I,ve had RA about 8 years now and have very bad problems with my feet.My big toes are bent inwards and I also have hammertoes,some toes worse than others.Had Morton’s Neuromas in both feet.Had surgery on one but not bothered with other as did not feel any benefit from it.Am under podiatry who made me some bespoke insoles which didn,t help me much.They have now made me some bespoke shoes,well trainers actually.They are not very pretty but I believe I am very lucky to be given these on the NHS as they are very expensive.I am finding it very difficult now to get any shoes to fit me which is why they made me some.I have barely any feeling in my feet but am in constant pain with them if that makes sense!I suffer with terrible corns and callouses which add to the pain.I have been told they will only get worse which I dread.I am 47 years old and quite active.I have 4 dogs who need a lot of exercise so walk every day.Some days it nearly kills me but I walk through the pain.I tell my husband to carry on in front and I will catch up.I,m determined I will continue walking my dogs no matter how hard it is.I am just waiting for an appointment with the podiatry surgeons to see what he can do to help me and I am just going on to methotrexate which I will be taking alongside sulfraseline which I have been taking for the last eight years.

I would definitely see your GP and ask for a referral to orthotics or poditary sooner rather than later.They can do quite a lot of things to help nowadays.Good luck with it and hope you get them sorted.You take your feet for granted until something goes wrong with them,well I know I did!xx

Deejojo profile image
Deejojo in reply toBingo2004

Bless u thank u x

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