Help !

[Damaged]

I am having weird sensations that I find difficult to describe. It is like head rushes, light headed ness . A lack of equilibrium .

The only drug I am on is Rituxan, Nexeum .

[Jesnaskah]

Oh no... Has this happened before? I remember you mentioning that they are putting you on the same med again... Do you think it is something you ingested that doesn't work well with the med?? If it persists and gets more intense, you should go to an Urgent Care so they can check your vitals (blood pressure and such!)

I get all kinds of weird sensations, even having my entire left side go numb, but I figure, what the hell... Any sensation is possible with our horrible disease at this point... Especially with the meds we are on. Sometimes I feel like I am on a roller coastar as I am trying to fall asleep at night, almost like a bad LSD trip or something... Not that I've done it.. But don't know any other way to describe it. Okay... Changing subject...

If I constantly felt light headed... I'd definitely get that checked out. Maybe it's vertigo!

Let us know how your getting along!

[Damaged in reply to Jesnaskah]

It is such a strange sensation that I find it difficult to describe. How do I ASK A DOCTOR 👩‍⚕️? Sorry caps got stuck lol

It happens when I am lying down or sitting. Not heart rate or blood pressure. I check those all the time. I suspect damage to inner ear ! Perhaps sugar/insulin , diabetes a real possibility given genetics and history ? I am beyond figuring it out. If it persists I will go to clinic but I see Rheumy and Respiratory guy this next week. I am getting X-ray and pulmonary function test so perhaps that will provide an answer. I only have Rituxan in me currently, but who knows what that is doing! Nothing to alarming but will update later. I was hoping someone may be having similar experience.

[A0176691 in reply to Damaged]

I get bizarre sensations after a few weeks on symbalta, then also when on celexa. Trying a different antianxiety drug and so far better for a month. Drugs affect brain, chemicals, ergo feelings very personally. If you (like me) process drugs slowly through your system, then they persist longer and have stronger impact.

[Damaged in reply to A0176691]

I am currently drug free, except Rituxan infusion in Feb. I suspect an inner ear issue but have scheduled an appointment with GP for Thursday. Another issue causing concern is broken veins not just on legs but in my temple as well. I also have allergies which may play a role ???