2 Weeks in 😀

[JayneN]

Well week 2 of my Biologics injection and definately seing an improvement. My chest is much better, still in a lot of pain in my back and hands but only time will tell . Side effects wise I’m exhausted, a little queasy but real bad headaches and sore throat but I’d sooner have them than the joint pain . Fingers crossed for the next 2 week 🤞wishing everyone well .

[Hidden]

Hi Jayne, I just had a good search to see what Biologic you're on but unfortunately I've never heard of it. Great news that it's starting to work though.

When I started RoActemra I also suffered nausea and headaches but these soon wore off and it's only occasional now 6mths in.

Fingers crossed you continue to improve x

[JayneN in reply to Hidden]

Hi Paulywoo the biologic im on is a new one to the market only just come from America . The reason I couldn’t go on the more common ones was because I had skin cancer in sept 2015 which is now clear. I can feel myself in a better place from we’re I was already just hope it continues. Can I ask if you take MTX with yours ? I’m still taking it and I absolutely hate it . Just done my jab as we speak . I’d like to come off MTX but just wondered is it necessary to take both ? And so glad they’re working for you ! In my opinion they should be given to everyone but obviously because of the cost it’s not possible.

[Hidden in reply to JayneN]

You've had a lot to deal with getting skin cancer too. I do take metoject at just 10mg weekly. I believe RoActemra can be taken without Mtx but hopefully it will continue to work longer with it. I used to worry about the mtx too but after a very frightening and debilitating flare last year I would take anything now to be honest.

I find the mtx makes me fatigued and foggy but I'm living a much better life with it.

[JayneN in reply to Hidden]

I’m only on 10mg as couldn’t tolerate any more . It’s just so awful it’s like it stops u from having a normal life . Im not a drinker but it would be nice to have the option as I won’t drink alcohol atall with the MTX. I loved goin abroad

But can’t go in the sun anymore with the MTX. My skin cancer wasn’t caused by the sun it was a drug called azathiaprine that I’d taken for 12yrs for my UC. Wouldn’t it be great just to be back to normality and have a pain free life 😀

[Hidden in reply to JayneN]

I don't drink often now. I know with mtx you should be ok if you stay within govt guidelines but I find my Alt goes up if I do. A pain free life would be wonderful. I've forgotten what it was like lol.

[JayneN in reply to Hidden]

Me too .... hope all goes well for you and Thankyou for replying to my post and sharing your experience....

[karenpenn]

Good Luck I am hopefully starting mine in two weeks time when I see the biologics nurse on the 31st as really need something as in so much pain especially in my feet and hands and knees as always swollen as the other DMARDS did not agree with me.

[JayneN in reply to karenpenn]

Hope they work for u Karenpenn. I’ve not been able to tolerate many if the drugs tbh that’s why I’m on Biologics...

[karenpenn]

Best wishes and thank you for the reply.

[JayneN in reply to karenpenn]

U too 🌹